Growth in CHARGE syndrome: optimizing care with a multidisciplinary approach

DR Dijk, G Bocca… - Journal of …, 2019 - Taylor & Francis
CHARGE (Coloboma of the eye, Heart defects, Atresia of the choanae, Retardation of
growth and/or development, Genital hypoplasia, Ear anomalies including hearing loss) …

Health care transition in adolescents and young adults with chronic kidney disease: focus on the individual and family support systems

CS Pruette, D Ranch, WV Shih, MDG Ferris - Advances in Chronic Kidney …, 2022 - Elsevier
Health care transition (HCT) from pediatric to adult-focused services is a longitudinal
process driven by the collaboration and interactions of adolescent/young adult patients, their …

[HTML][HTML] Opportunities for inclusion and engagement in the transition of autistic youth from pediatric to adult healthcare: a qualitative study

JL Ames, A Mahajan, MN Davignon… - Journal of Autism and …, 2023 - Springer
Transitioning autistic youth from pediatric to adult healthcare requires coordination of
multiple stakeholders, including youth, caregivers, and pediatric and adult care providers …

Improving health care transitions for children and youth with special health care needs

MJ Okumura, DZ Kuo, AN Ware, MH Cyr, PH White - Academic pediatrics, 2022 - Elsevier
Health care transitions (HCT) from pediatric to adult health care remain a challenge for
children and youth with special health care needs (CYSHCN), their families and their …

Brief report: Classifying rates of students with autism and intellectual disability in North Carolina: Roles of race and economic disadvantage

J Howard, JN Copeland, EJ Gifford, J Lawson… - Journal of autism and …, 2021 - Springer
We examined special education classifications among students aged 3–21 in North
Carolina public schools, highlighting autism spectrum disorder (ASD) and intellectual …

Phenomenological study of the transition process for adolescents with intellectual and developmental disabilities

JD Benson, R Tokarski, MG Blaskowitz… - The American Journal …, 2021 - research.aota.org
Importance: Occupational therapy practitioners should understand the barriers faced by
young adults with intellectual and developmental disabilities (IDD) who are attempting a …

Stakeholders' perspectives on caregiver outcomes for health care transition for adolescents and young adults with special health care needs: A qualitative study

CDV Fair, C Betz, D Naranjo, J Porter… - Child: Care, Health …, 2023 - Wiley Online Library
Background Previous literature has explored parent/caregiver perspectives and satisfaction
with the health care transition (HCT) process for their adolescents and young adults with …

Assessing the feasibility of an intervention for adolescents and parents transitioning out of paediatric eating disorder services: A mixed methods study

M Nicula, M Kimber, K Boylan, C Grant… - European Eating …, 2023 - Wiley Online Library
Objective To assess the feasibility of a new intervention designed to support adolescents
and parents in the transition from paediatric eating disorder (ED) treatment to adult mental …

Infectious diseases-related emergency department visits among non-elderly adults with intellectual and developmental disabilities in the United States: results from …

H Zandam, M Mitra, I Akobirshoev, FS Li… - Population health …, 2022 - liebertpub.com
Emerging evidence on the disproportionate impact of COVID-19 on people with intellectual
and developmental disabilities (IDD) points to the underlying risk and burden of infectious …

[PDF][PDF] Navigating pediatric to adult healthcare transition: a national institutes of health workshop

S Calabrese, S Lee, MA Mollica, L Wiener… - The Journal of …, 2022 - Elsevier
Conclusions The recent proliferation of efforts to address research and practice challenges
in HCT for adolescent populations has presented opportunities to revolutionize thinking and …