[HTML][HTML] Evolution of patient-reported outcomes and their role in multiple sclerosis clinical trials
Patient-reported outcomes (PROs) are playing an increasing role in multiple sclerosis (MS)
research and practice, and are essential for understanding the effects that MS and MS …
research and practice, and are essential for understanding the effects that MS and MS …
The role of condition-specific preference-based measures in health technology assessment
D Rowen, J Brazier, R Ara, I Azzabi Zouraq - Pharmacoeconomics, 2017 - Springer
A condition-specific preference-based measure (CSPBM) is a measure of health-related
quality of life (HRQOL) that is specific to a certain condition or disease and that can be used …
quality of life (HRQOL) that is specific to a certain condition or disease and that can be used …
Study protocol: improving cognition in people with progressive multiple sclerosis: a multi-arm, randomized, blinded, sham-controlled trial of cognitive rehabilitation and …
A Feinstein, MP Amato, G Brichetto, J Chataway… - BMC neurology, 2020 - Springer
Background Cognitive dysfunction affects up to 70% of people with progressive MS (PMS). It
can exert a deleterious effect on activities of daily living, employment and relationships …
can exert a deleterious effect on activities of daily living, employment and relationships …
A systematic review of the literature on the development of condition-specific preference-based measures of health
Background Health state utility values (HSUVs) are required to calculate quality-adjusted life-
years (QALYs). They are frequently derived from generic preference-based measures of …
years (QALYs). They are frequently derived from generic preference-based measures of …
Condition-specific or generic preference-based measures in oncology? A comparison of the EORTC-8D and the EQ-5D-3L
PK Lorgelly, B Doble, D Rowen, J Brazier - Quality of Life Research, 2017 - Springer
Purpose It has been argued that generic health-related quality of life measures are not
sensitive to certain disease-specific improvements; condition-specific preference-based …
sensitive to certain disease-specific improvements; condition-specific preference-based …
[HTML][HTML] Estimating a preference-based index for an eight-dimensional health state classification system for multiple sclerosis
Background Condition-specific measures are frequently used to assess the health-related
quality of life of people with multiple sclerosis (MS). Such measures are unsuitable for use in …
quality of life of people with multiple sclerosis (MS). Such measures are unsuitable for use in …
Using the Fatigue Severity Scale to inform healthcare decision-making in multiple sclerosis: mapping to three quality-adjusted life-year measures (EQ-5D-3L, SF-6D …
Background Fatigue has a major influence on the quality of life of people with multiple
sclerosis. The Fatigue Severity Scale is a frequently used patient-reported measure of …
sclerosis. The Fatigue Severity Scale is a frequently used patient-reported measure of …
Balance Right in Multiple Sclerosis (BRiMS): a feasibility randomised controlled trial of a falls prevention programme
H Gunn, KN Stevens, S Creanor, J Andrade… - Pilot and feasibility …, 2021 - Springer
Background Balance, mobility impairments and falls are problematic for people with multiple
sclerosis (MS). The “Balance Right in MS (BRiMS)” intervention, a 13-week home and group …
sclerosis (MS). The “Balance Right in MS (BRiMS)” intervention, a 13-week home and group …
Association between early treatment of multiple sclerosis and patient-reported outcomes: a nationwide observational cohort study
A He, T Spelman, A Manouchehrinia… - Journal of Neurology …, 2023 - jnnp.bmj.com
Background Timing of disease-modifying therapy affects clinical disability in multiple
sclerosis, but it is not known whether patient reported outcomes are also affected. This study …
sclerosis, but it is not known whether patient reported outcomes are also affected. This study …
A scoping review to create a framework for the steps in developing condition-specific preference-based instruments de novo or from an existing non-preference-based …
Background There is no widely accepted framework to guide the development of condition-
specific preference-based instruments (CSPBIs) that includes both de novo and from …
specific preference-based instruments (CSPBIs) that includes both de novo and from …