Methods This narrative review was written using data drawn from a systematic literature
search last updated on June 24, 2019, from which 139 articles were analyzed in full text. For …

Aim To identify the research on childhood disability service adaptations and their impact on
children and young people with long‐term disability during the COVID‐19 pandemic …

The transition from children's services to adult services for young people with attention deficit
hyperactivity disorder : t Page 1 This is a repository copy of The transition from children's services …

Since the Japan Pediatric Society published its “Recommendations on Transitional Care for
Patients with Childhood-Onset Chronic Diseases” in 2014, there has been an increased …

Without a structure to address healthcare transition, adolescents and young adults with
neurological disorders are likely to have disruptions in their care that result in a higher need …

Background Autonomy in participation of young adults with cerebral palsy (CP) is not well
understood due to the lack of appropriate instruments, especially for the Brazilian …

Aim This exploratory study evaluates rating scale usage by experts from the European
Reference Network for Rare Neurological Diseases (ERN-RND) for paediatric MD …

Objective Standards of care and new genetic and molecular therapies have contributed to
increasing life expectancy of patients with neuromuscular diseases (NMDs). This review …

Youth with neurologic conditions experience multiple life transitions. The transfer from
pediatric to adult health care systems exemplifies one such complex and multifaceted …

A Proposed Framework Led by the Child Neurology Foundation (CNF), a broadly
representative panel was brought together to address these issues. The initial committee …