From 'refrigerator mothers' to empowered advocates: The evolution of the autism parent
M Cleary, S West, L Mclean - Issues in Mental Health Nursing, 2023 - Taylor & Francis
A historical perspective offers a chance to reflect on unfolding narratives. The emergence of
the diagnosis of autism attracted some positions of blame for “refrigerator mothers”. With …
the diagnosis of autism attracted some positions of blame for “refrigerator mothers”. With …
Parent reported barriers and facilitators to support services for autistic children in Aotearoa New Zealand
C Wallace-Watkin, J Sigafoos, L Woods… - Autism, 2023 - journals.sagepub.com
We surveyed New Zealand parents of autistic children to identify their perceived barriers and
facilitators to accessing support services, including the influence of a family's level of …
facilitators to accessing support services, including the influence of a family's level of …
Identifying autistic children: Priorities for research arising from a systematic review of parents' experiences of the assessment process
S O'Neill, GM O'Donnell - Autism, 2024 - journals.sagepub.com
Our goal was to systematically identify, appraise and synthesise the qualitative research on
parents' experiences of the autism assessment process. The empirical studies were quality …
parents' experiences of the autism assessment process. The empirical studies were quality …
Family and individual quality of life in parents of children with developmental disorders and diabetes type 1
M Ljubičić, S Delin, I Kolčić - Journal of clinical medicine, 2022 - mdpi.com
Background: This cross-sectional study assessed both family and individual quality of life
(QOL), and their association with self-esteem, optimism, chronic psychological stress …
(QOL), and their association with self-esteem, optimism, chronic psychological stress …
Examining the associations among knowledge, empowerment, and advocacy among parents of transition-aged youth with autism
Parents of individuals with autism face many challenges in accessing appropriate services
and supports for their offspring. Parents also play vital roles in advocating for their offspring's …
and supports for their offspring. Parents also play vital roles in advocating for their offspring's …
Parent perspectives of children with selective mutism and co-occurring autism
S Keville, P Zormati, A Shahid, C Osborne… - International Journal …, 2023 - Taylor & Francis
Selective mutism (SM) and autism frequently co-occur together, exacerbating social
communication deficits and associated anxiety. However, professionals have lacked a …
communication deficits and associated anxiety. However, professionals have lacked a …
Meta-RegGNN: Predicting verbal and full-scale intelligence scores using graph neural networks and meta-learning
Decrypting intelligence from the human brain construct is vital in the detection of particular
neurological disorders. Recently, functional brain connectomes have been used …
neurological disorders. Recently, functional brain connectomes have been used …
Identifying the Correlates of Individual, Peer and Systemic Advocacy Among Parents of Children with Disabilities Who are Interested in Civic Engagement
Parent advocacy is often critical for families of individuals with disabilities. Prior research has
suggested that parent advocacy occurs across three levels: individual, peer, and systemic …
suggested that parent advocacy occurs across three levels: individual, peer, and systemic …
The perceived informational needs of family caregivers of children hospitalized in a burn department: A cross-sectional study
S Yavari, M Vahidi… - Journal of Burn Care …, 2024 - academic.oup.com
Children are most vulnerable to burn injuries, and their families are their most important
source of support. Therefore, it is necessary to identify the information needs of such parents …
source of support. Therefore, it is necessary to identify the information needs of such parents …
The relationship between adverse childhood experiences and developmental disorders: implications for family support and child advocacy
AY Alford, AD Riggins, LT Cowan… - Children's Health …, 2024 - Taylor & Francis
The association between developmental disorders, specifically ADHD and Autism Spectrum
Disorder, and adverse childhood experiences (ACEs) is examined in this study. The …
Disorder, and adverse childhood experiences (ACEs) is examined in this study. The …