From 'refrigerator mothers' to empowered advocates: The evolution of the autism parent

M Cleary, S West, L Mclean - Issues in Mental Health Nursing, 2023 - Taylor & Francis
A historical perspective offers a chance to reflect on unfolding narratives. The emergence of
the diagnosis of autism attracted some positions of blame for “refrigerator mothers”. With …

Parent reported barriers and facilitators to support services for autistic children in Aotearoa New Zealand

C Wallace-Watkin, J Sigafoos, L Woods… - Autism, 2023 - journals.sagepub.com
We surveyed New Zealand parents of autistic children to identify their perceived barriers and
facilitators to accessing support services, including the influence of a family's level of …

Identifying autistic children: Priorities for research arising from a systematic review of parents' experiences of the assessment process

S O'Neill, GM O'Donnell - Autism, 2024 - journals.sagepub.com
Our goal was to systematically identify, appraise and synthesise the qualitative research on
parents' experiences of the autism assessment process. The empirical studies were quality …

Family and individual quality of life in parents of children with developmental disorders and diabetes type 1

M Ljubičić, S Delin, I Kolčić - Journal of clinical medicine, 2022 - mdpi.com
Background: This cross-sectional study assessed both family and individual quality of life
(QOL), and their association with self-esteem, optimism, chronic psychological stress …

Examining the associations among knowledge, empowerment, and advocacy among parents of transition-aged youth with autism

C Li, WC Cheung, MM Burke, JL Taylor, LS DaWalt - Autism, 2024 - journals.sagepub.com
Parents of individuals with autism face many challenges in accessing appropriate services
and supports for their offspring. Parents also play vital roles in advocating for their offspring's …

Parent perspectives of children with selective mutism and co-occurring autism

S Keville, P Zormati, A Shahid, C Osborne… - International Journal …, 2023 - Taylor & Francis
Selective mutism (SM) and autism frequently co-occur together, exacerbating social
communication deficits and associated anxiety. However, professionals have lacked a …

Meta-RegGNN: Predicting verbal and full-scale intelligence scores using graph neural networks and meta-learning

I Jegham, I Rekik - International Workshop on PRedictive Intelligence In …, 2022 - Springer
Decrypting intelligence from the human brain construct is vital in the detection of particular
neurological disorders. Recently, functional brain connectomes have been used …

Identifying the Correlates of Individual, Peer and Systemic Advocacy Among Parents of Children with Disabilities Who are Interested in Civic Engagement

MM Burke, C Li, WC Cheung, A Johnston… - … of Developmental and …, 2024 - Springer
Parent advocacy is often critical for families of individuals with disabilities. Prior research has
suggested that parent advocacy occurs across three levels: individual, peer, and systemic …

The perceived informational needs of family caregivers of children hospitalized in a burn department: A cross-sectional study

S Yavari, M Vahidi… - Journal of Burn Care …, 2024 - academic.oup.com
Children are most vulnerable to burn injuries, and their families are their most important
source of support. Therefore, it is necessary to identify the information needs of such parents …

The relationship between adverse childhood experiences and developmental disorders: implications for family support and child advocacy

AY Alford, AD Riggins, LT Cowan… - Children's Health …, 2024 - Taylor & Francis
The association between developmental disorders, specifically ADHD and Autism Spectrum
Disorder, and adverse childhood experiences (ACEs) is examined in this study. The …