A Parkinson care-coordinator may make a difference: A scoping review on multi-sectoral integrated care initiatives for people living with Parkinson's disease and their …

LB Vester, A Haahr, TL Nielsen, S Bartolomeu… - Patient Education and …, 2023 - Elsevier
Objective To identify multi-sectoral integrated care initiatives for people with Parkinson's
disease and caregivers. Method Following the Matrix Method we created a synthesis of …

Health care experiences of people with Parkinson's disease in Australia

M Danoudis, SE Soh, R Iansek - BMC geriatrics, 2023 - Springer
Background Little is known about the health care experiences of people with Parkinson's
disease (PwP) living in Australia. Exploring health care experiences can provide insight into …

Understanding support systems for Parkinson's disease management in community settings: A cross‐national qualitative study

D Soilemezi, A Palmar‐Santos… - Health …, 2023 - Wiley Online Library
Background Health and social care systems face difficulties in managing multimorbidity,
disease burden and complex needs in long‐term conditions such as Parkinson's disease …

Living with Parkinson's in England during and beyond COVID-19 restrictions: a longitudinal qualitative study

CD Murray, FJR Eccles, I Garner, C Doyle… - Aging & Mental …, 2024 - Taylor & Francis
Objectives Government-enforced lockdown restrictions associated with preventing the
spread of the COVID-19 virus had a series of unintended, negative effects. One group of …

[PDF][PDF] The perspectives of patients with Parkinson's disease: A qualitative systematic review

B Nørgaard, SB Titlestad, C Abrahamsen… - J. Nurs. Educ …, 2023 - researchgate.net
Background and objective: Parkinson's disease has considerable impact on the quality of
life of both patients and their caregivers. Patients' perspectives are a source of vital …

Measuring quality of life in Parkinson's disease—A call to rethink conceptualizations and assessments

M Stührenberg, CS Berghäuser, M van Munster… - Journal of Personalized …, 2022 - mdpi.com
Parkinson's disease (PD) is a chronic condition that considerably impacts the perception of
quality of life (QoL) in both patients and their caregivers. Modern therapeutic approaches …

Le co-design de technologies de eSanté: Un enchevêtrement de conversations, de tensions créatrices et d'inscriptions circulantes

S Grosjean - Approches Théoriques en Information-Communication …, 2022 - shs.cairn.info
La notion de sensemaking a été introduite initialement par Weick (1995) et reprise par des
chercheurs en communication organisationnelle qui développent une approche de …

Co-designing an integrated care network with people living with Parkinson's Disease: A heterogeneous social network of people, resources and technologies

A Gauthier-Beaupré, E Poitras, S Grosjean… - Journal of personalized …, 2022 - mdpi.com
As part of the iCARE-PD project, a multinational and multidisciplinary research endeavour to
address complex care in Parkinson's disease, a Canadian case study focused on gaining a …

Co-constructing experiential knowledge in health: The contribution of people living with Parkinson to the co-design approach

A Sendra, S Grosjean, L Bonneville - Qualitative Health Communication, 2022 - tidsskrift.dk
Background: The use of collaborative approaches in the design of digital health
technologies could help researchers to better understand the patient perspective. Starting …

Centering Communities in Global Health: Using Human-Centered Design to Facilitate Collaboration and Intervention Development

SE Baumann, MA Rabin, B Devkota… - … Equity Research & …, 2024 - journals.sagepub.com
Background Utilizing iterative and collaborative tools, Human-centered Design (HCD)
facilitates the creation of tailored solutions for multifaceted issues by fostering empathy and …