Ethical design of intelligent assistive technologies for dementia: a descriptive review

M Ienca, T Wangmo, F Jotterand, RW Kressig… - … and engineering ethics, 2018 - Springer
Abstract The use of Intelligent Assistive Technology (IAT) in dementia care opens the
prospects of reducing the global burden of dementia and enabling novel opportunities to …

[HTML][HTML] Between openness and privacy in genomics

E Vayena, U Gasser - PLoS medicine, 2016 - journals.plos.org
Between Openness and Privacy in Genomics | PLOS Medicine Skip to main content
Advertisement PLOS Medicine Browse Current Issue Journal Archive Special Issues …

[图书][B] Achieving person-centred health systems: evidence, strategies and challenges

J North - 2020 - books.google.com
The idea of person-centred health systems is widely advocated in political and policy
declarations to better address health system challenges. A person-centred approach is …

From genetics to genomics: facing the liability implications in clinical care

G Marchant, M Barnes, JP Evans, B LeRoy… - Journal of Law …, 2020 - cambridge.org
Health care is transitioning from genetics to genomics, in which single-gene testing for
diagnosis is being replaced by multi-gene panels, genome-wide sequencing, and other …

The “we” in the “me” solidarity and health care in the era of personalized medicine

B Prainsack - Science, Technology, & Human Values, 2018 - journals.sagepub.com
This article challenges a key tacit assumption underpinning legal and ethical instruments in
health care, namely, that people are ideally bounded, independent, and often also …

[图书][B] Deliberate ignorance: Choosing not to know

R Hertwig, C Engel - 2021 - books.google.com
Psychologists, economists, historians, computer scientists, sociologists, philosophers, and
legal scholars explore the conscious choice not to seek information. The history of …

Familial genetic risks: how can we better navigate patient confidentiality and appropriate risk disclosure to relatives?

ES Dove, V Chico, M Fay, G Laurie… - Journal of Medical …, 2019 - jme.bmj.com
This article investigates a high-profile and ongoing dilemma for healthcare professionals
(HCPs), namely whether the existence of a (legal) duty of care to genetic relatives of a …

Health research participants' preferences for receiving research results

CR Long, MK Stewart, TV Cunningham… - Clinical …, 2016 - journals.sagepub.com
Background: Participants in health research studies typically express interest in receiving
the results from the studies in which they participate. However, participants' preferences and …

The privacy risks of direct-to-consumer genetic testing: A case study of 23andMe and Ancestry

SA Garner, J Kim - Wash. UL Rev., 2018 - HeinOnline
Direct-to-consumer genetic testing (DTC-GT) companies have proliferated and expanded in
recent years. Using biospecimens directly submitted by consumers, these companies …

[HTML][HTML] Health research participants are not receiving research results: a collaborative solution is needed

CR Long, MK Stewart, PA McElfish - Trials, 2017 - Springer
Health research participants want the results of the studies in which they participate but do
not typically receive them. Researchers generally express support for sharing results with …