Ethical design of intelligent assistive technologies for dementia: a descriptive review
Abstract The use of Intelligent Assistive Technology (IAT) in dementia care opens the
prospects of reducing the global burden of dementia and enabling novel opportunities to …
prospects of reducing the global burden of dementia and enabling novel opportunities to …
[图书][B] Achieving person-centred health systems: evidence, strategies and challenges
J North - 2020 - books.google.com
The idea of person-centred health systems is widely advocated in political and policy
declarations to better address health system challenges. A person-centred approach is …
declarations to better address health system challenges. A person-centred approach is …
From genetics to genomics: facing the liability implications in clinical care
G Marchant, M Barnes, JP Evans, B LeRoy… - Journal of Law …, 2020 - cambridge.org
Health care is transitioning from genetics to genomics, in which single-gene testing for
diagnosis is being replaced by multi-gene panels, genome-wide sequencing, and other …
diagnosis is being replaced by multi-gene panels, genome-wide sequencing, and other …
The “we” in the “me” solidarity and health care in the era of personalized medicine
B Prainsack - Science, Technology, & Human Values, 2018 - journals.sagepub.com
This article challenges a key tacit assumption underpinning legal and ethical instruments in
health care, namely, that people are ideally bounded, independent, and often also …
health care, namely, that people are ideally bounded, independent, and often also …
[图书][B] Deliberate ignorance: Choosing not to know
R Hertwig, C Engel - 2021 - books.google.com
Psychologists, economists, historians, computer scientists, sociologists, philosophers, and
legal scholars explore the conscious choice not to seek information. The history of …
legal scholars explore the conscious choice not to seek information. The history of …
Familial genetic risks: how can we better navigate patient confidentiality and appropriate risk disclosure to relatives?
ES Dove, V Chico, M Fay, G Laurie… - Journal of Medical …, 2019 - jme.bmj.com
This article investigates a high-profile and ongoing dilemma for healthcare professionals
(HCPs), namely whether the existence of a (legal) duty of care to genetic relatives of a …
(HCPs), namely whether the existence of a (legal) duty of care to genetic relatives of a …
Health research participants' preferences for receiving research results
CR Long, MK Stewart, TV Cunningham… - Clinical …, 2016 - journals.sagepub.com
Background: Participants in health research studies typically express interest in receiving
the results from the studies in which they participate. However, participants' preferences and …
the results from the studies in which they participate. However, participants' preferences and …
The privacy risks of direct-to-consumer genetic testing: A case study of 23andMe and Ancestry
SA Garner, J Kim - Wash. UL Rev., 2018 - HeinOnline
Direct-to-consumer genetic testing (DTC-GT) companies have proliferated and expanded in
recent years. Using biospecimens directly submitted by consumers, these companies …
recent years. Using biospecimens directly submitted by consumers, these companies …
[HTML][HTML] Health research participants are not receiving research results: a collaborative solution is needed
CR Long, MK Stewart, PA McElfish - Trials, 2017 - Springer
Health research participants want the results of the studies in which they participate but do
not typically receive them. Researchers generally express support for sharing results with …
not typically receive them. Researchers generally express support for sharing results with …