Biobanking in Global Health & Research

JW Ashcroft, CC Macpherson - … Decisions. Volume I: Decisions at the …, 2023 - Springer
Biobanking of patient-derived materials is routine in health care, research, and public health
emergencies. Ethical guidelines for biobanking address concerns including some about …

Community Engagement and the Ethical Governance of Canadian COVID-19 Biobanks

E Doerksen - 2023 - escholarship.mcgill.ca
Canadian COVID-19 biobanks are valuable resources for public health research on the
SARS-CoV-2 virus and will continue to be so in the coming years. As is true for all biobanks …

Publicaciones sobre los aspectos éticos, legales y sociales de los biobancos entre 2011-2018: Una revisión panorámica

VA Portal, MD i Argemí - Revista española de salud pública, 2020 - dialnet.unirioja.es
Métodos: Se llevó a cabo una revisión panorámica y un análisis temático de las
publicaciones que abordaban los aspectos éticos, legales y sociales de los biobancos. Se …

Frontline Ethico-Legal Issues in Childhood Cancer Genetics Research

MJS Beauvais, K Sénécal, CV Fernandez… - The Hereditary Basis of …, 2021 - Springer
Clinical research involving child participants frequently raises both legal and ethical
concerns that researchers, clinicians, and parents must navigate to pursue relevant pediatric …

A framework for ethics review of applications to store, reuse and share tissue samples

SN Then, W Lipworth, C Stewart, I Kerridge - Monash Bioethics Review, 2021 - Springer
The practice of biobank networking—where biobanks are linked together, and researchers
share human tissue samples—is an increasingly common practice both domestically and …

WHAT DO WE OWE TO HENRIETTA LACKS? CONSIDERATIONS ON THE ETHICS OF BIOBANKING.

AM Năşcuţiu, AR Lupu - Romanian Archives of Microbiology …, 2020 - search.ebscohost.com
Henrietta Lacks died in 1951, aged 31, from a very aggressive form of cervical cancer.
Without her being either informed or asked for consent, her tumoral cells were collected and …

Propuesta de pautas bioéticas para el uso secundario de muestras biológicas y datos asociados en investigación biomédica en el CIHATA de la Universidad de …

AJ Chacón Cordero - 2023 - repositorio.una.ac.cr
En la investigación biomédica tradicional el empleo de muestras biológicas y sus datos
asociados es establecido en el consentimiento informado específico para un propósito …

Imperative and Dispositive Norms in Legal Regulation of Genetic Research in Russia

MV Voronin, MV Zakharova… - Utopía y praxis …, 2020 - dialnet.unirioja.es
The article is devoted to the analysis of diverse utilization varieties of regulatory framework
at adjusting genetic techniques and global legal practice research. Internal determinants of …

Empirical studies on the practice translation of ethical recommendations. Cross-sectional study on evaluation objects

J Schwietering, H Langhof, D Strech - 2022 - researchsquare.com
Background: Empirical research can become relevant for bioethics in at least two ways. First,
to inform the development or refinement of ethical recommendations. Second, to evaluate …

[PDF][PDF] The 1989 United Nations Convention on the Rights of the Child states that the “best interests of the child shall be a primary consideration” in all actions …

MJS Beauvais, K Sénécal, CV Fernandez, D Sinnett… - files.ca-1.osf.io
Clinical research involving child participants frequently raises both legal and ethical
concerns that researchers, clinicians and parents must navigate in order to pursue relevant …