Managing genetic information sharing at family and population level

A McNeill - European Journal of Human Genetics, 2024 - nature.com
The process by which the “at risk” relatives of a person with a genetic condition should be
notified of the possible need for them to have genetic testing has long been controversial. At …

Genomic Information for Families of the Terminally ill (GIFT) Project: Building Evidence for An Intervention Using Mixed Methods

SA White - 2023 - opus.lib.uts.edu.au
As genomic testing moves into routine healthcare, including palliative care, understanding
the needs of health professionals will maximise the benefits of genomics while minimising …