ABSTRACT BACKGROUND Patients and healthcare stakeholders are increasingly
becoming engaged in the planning and conduct of biomedical research. However, limited …

PURPOSE Engaging patients, caregivers, and other health care stakeholders as partners in
planning, conducting, and disseminating research is a promising way to improve clinical …

Stakeholder engagement is increasingly common in health research, with protocols for
engaging multiple stakeholder groups becoming normative in patient-centered outcomes …

There is growing recognition that involving patients in the development of new patient-
reported outcome measures helps ensure that the outcomes that matter most to people …

Background Patient engagement in research (PEIR) is promoted to improve the relevance
and quality of health research, but has little conceptualization derived from empirical data …

Plain English summary Patient engagement (or patient and public involvement) in health
research is becoming a requirement for many health research funders, yet many …

Background Showing how engagement adds value for all stakeholders can be an effective
motivator for broader implementation of patient engagement. However, it is unclear what …

Background There are mounting calls for robust, critical evaluation of the impact of patient
and public involvement (PPI) in health research. However, questions remain about how to …

Objectives Lack of clarity on the definition of “patient engagement” has been highlighted as
a barrier to fully implementing patient engagement in research. This study identified themes …

Patient 'engagement'or 'involvement'in health research broadly refers to including people
with lived experience (ie individuals with personal experience of a health issue and their …