Background Current research suggests that while patients are becoming more engaged
across the health delivery spectrum, this involvement occurs most often at the pre …

This paper reports on the first systematic review of literature associated with participatory
research involving people identified with sensory impairments and/or intellectual …

Authentic participation involving jointly undertaken analysis of data and dissemination of
findings is rarely evident in participatory research involving disabled people. This paper …

Accessible Summary People with disabilities often do research. Sometimes, they work
together with people with academic training. Sometimes, working together can be …

Accessible Summary People with disabilities have the right to use patient‐reported outcome
measures (PROMs) to tell their doctors and therapists what they think and feel. Therefore …

Planning inclusive research should center meaningful engagement of co-researchers with
intellectual and/or developmental disabilities to address issues that are important to their …

This paper explores the potential of an online TimeBank for inclusive research to address
some of the challenges related to the unequal distribution of power and money for …

Background We conducted a rapid scoping review to identify how inclusive research teams
use technology during the research process that could support remote collaboration during …

Research with people with developmental disabilities has a bleak history, marred by abuse
and exclusion. In order to enhance the ability of science to promote the quality of life and …

Background Stakeholder engagement impacts on the relevance and usability of guidelines.
Consequently, guideline developers are advised to engage with a diverse group of …