The challenges of providing palliative care for people with intellectual disabilities: a literature review

S Dunkley, R Sales - International Journal of Palliative …, 2014 - magonlinelibrary.com
People with intellectual disabilities are often marginalised from mainstream health-care
services because of the complexities of their disability. They are under-referred to specialist …

Challenges and opportunities for improvement when people with an intellectual disability or serious mental illness also need palliative care: A qualitative meta …

N Ashok, D Hughes, S Yardley - Palliative medicine, 2023 - journals.sagepub.com
Background: People with diagnoses of intellectual disability or serious mental illness have
higher mortality rates due to physical comorbidities; better understanding is needed to guide …

Concept of death and perceptions of bereavement in adults with intellectual disabilities

J McEvoy, R MacHale, E Tierney - Journal of Intellectual …, 2012 - Wiley Online Library
Background Bereavement is potentially a time of disruption and emotional distress. For
individuals with an intellectual disability (ID), a limited understanding of the concept of death …

End‐of‐life care and dying: issues raised by staff supporting older people with intellectual disability in community living services

M Wiese, RJ Stancliffe, S Balandin… - Journal of Applied …, 2012 - Wiley Online Library
Background The aim of this study was to explore the current status of end‐of‐life care and
dying of people with intellectual disability based on the experiences of staff in community …

Investigating the factors that affect the communication of death‐related bad news to people with intellectual disabilities by staff in residential and supported living …

I Tuffrey‐Wijne, T Rose - Journal of Intellectual Disability …, 2017 - Wiley Online Library
Background Most staff working in intellectual disability services will be confronted with
people with intellectual disabilities who need support around death, dying and …

Communicating about death and dying with adults with intellectual disabilities who are terminally ill or bereaved: A UK‐wide survey of intellectual disability support …

I Tuffrey‐Wijne, J Finlayson, J Bernal… - Journal of Applied …, 2020 - Wiley Online Library
Background Illness and death are part of life for everyone, including people with intellectual
disabilities. This study investigated the extent to which staff communicate about death with …

Specialist palliative care staff's varying experiences of talking with people with intellectual disability about their dying and death: A thematic analysis of in-depth …

B Foo, M Wiese, B Curryer, RJ Stancliffe… - Palliative …, 2021 - journals.sagepub.com
Background: The cognitive and communication challenges experienced by people with
intellectual disability present difficulties for health professionals, particularly in the face of …

Communicating about death and dying: Developing training for staff working in services for people with intellectual disabilities

I Tuffrey‐Wijne, T Rose, R Grant… - Journal of Applied …, 2017 - Wiley Online Library
Background Many people with intellectual disabilities are affected by death, yet
conversations about death are often avoided by staff working with them. This study aimed to …

'If and when?': The beliefs and experiences of community living staff in supporting older people with intellectual disability to know about dying

M Wiese, A Dew, RJ Stancliffe… - Journal of …, 2013 - Wiley Online Library
Background The aim of this study was to explore the way in which community living staff
engaged with people with intellectual disability (ID) about dying and death. Method Guided …

What constitutes good quality end‐of‐life care? Perspectives of people with intellectual disabilities and their families

K Cithambarm, M Duffy… - Journal of Policy and …, 2021 - Wiley Online Library
Background Due to increased life expectancy, just as with the general population, people
with intellectual disabilities are experiencing, and dying from, chronic and life‐limiting …