[HTML][HTML] Quality of life and correlating factors in children, adolescents with epilepsy, and their caregivers: A cross-sectional multicenter study from Germany

J Riechmann, LM Willems, R Boor, M Kieslich, S Knake… - Seizure, 2019 - Elsevier
Purpose To identify factors correlating with poorer quality of life (QoL) in children and
adolescents with epilepsy and regarding QoL and depression of their caregivers in …

[HTML][HTML] Infant and early childhood physical health assessments in the HEALthy Brain and Child Development (HBCD) Study

LA Cioffredi, B Garner, JR Maxwell, S Merhar… - Developmental …, 2024 - Elsevier
Abstract The HEALthy Brain and Child Development (HBCD) Study, a multi-site prospective
longitudinal cohort study, will examine human brain, cognitive, behavioral, social and …

Parental resilience and quality of life in children with developmental disabilities in Indonesia: the role of protective factors

Y Widyawati, RHJ Scholte, T Kleemans… - Journal of developmental …, 2023 - Springer
The severity of physical, cognitive, and social-emotional challenges in children with
developmental disabilities significantly impacts their quality of life. One of the most …

Understanding how self-determination affects the quality of life of young people with intellectual disability

C Mumbardó-Adam, E Vicente… - … Journal of Disability …, 2023 - Taylor & Francis
Quality of life (QoL) has been extensively studied within the field of intellectual disability, with
various theoretical frameworks being developed to guide the provision of appropriate …

Mediterranean diet is associated with better gastrointestinal health and quality of life, and less nutrient deficiency in children/adolescents with disabilities

H Bakırhan, V Özkaya, M Pehlivan - Frontiers in public health, 2023 - frontiersin.org
Background Children and adolescents with disabilities face various nutritional problems.
This study aimed to examine dietary characteristics, nutritional status and problems …

Health literacy and health outcomes among children with developmental disabilities: a systematic review

O Lindly, M Crossman, M Eaves… - … on Intellectual and …, 2020 - meridian.allenpress.com
Developmental disabilities (DDs) are prevalent and associated with health disparities
among children. Family health literacy of parents and/or children is one modifiable factor …

Stigma toward persons with intellectual disability in South America: a narrative review

M Tenorio, J Donoso, A Ali… - Journal of Policy and …, 2020 - Wiley Online Library
People with intellectual disability (ID) form one of the most underserved/stigmatized groups
in society. Published data have documented stigma toward this population group in different …

Exploring factors that impact activity participation of children and adolescents with severe developmental disabilities

A Taheri, A Perry, P Minnes - Journal of Intellectual Disability …, 2017 - Wiley Online Library
Background Despite the benefits of social participation, children and adolescents with
developmental disabilities (DD) are often excluded from taking part in social activities. There …

Experimental examination and social validation of a microswitch intervention to improve choice-making and activity engagement for six girls with Rett syndrome

F Stasolla, AO Caffò, V Perilli… - Developmental …, 2019 - Taylor & Francis
Background: The use of assistive technology, specifically microswitches, with children with
RTT has been shown to effectively moderate the impact of their disability on their quality of …

Parental perspectives on the quality of life of children with Down syndrome

E Fucà, P Galassi, F Costanzo, S Vicari - Frontiers in Psychiatry, 2022 - frontiersin.org
Down Syndrome (DS) is the most common chromosome abnormality and the most frequent
cause of developmental delay/intellectual disabilities in children. Although the investigation …