Chronically ill children's participation and health outcomes in shared decision-making: a scoping review

RO Wijngaarde, I Hein, J Daams… - European Journal of …, 2021 - Springer
Abstract Based on the United Nations Conventions on the Rights of the Child (CRC), it is a
child's right to participate in all matters concerning its wellbeing. Little is known about …

Palliative care in paediatric oncology: an update

N Salins, S Hughes, N Preston - Current oncology reports, 2022 - Springer
Abstract Purpose of this Review The purpose of this review is to describe the evolution of
palliative care in paediatric oncology, the needs of children and their families in a paediatric …

Breaking bad news: what parents would like you to know

MA Brouwer, ELM Maeckelberghe… - Archives of disease in …, 2021 - adc.bmj.com
Objective Breaking bad news about life-threatening and possibly terminal conditions is a
crucial part of paediatric care for children in this situation. Little is known about how the …

Physician decision-making process about withholding/withdrawing life-sustaining treatments in paediatric patients: a systematic review of qualitative evidence

Y Zhong, A Cavolo, V Labarque, C Gastmans - BMC Palliative Care, 2022 - Springer
Background With paediatric patients, deciding whether to withhold/withdraw life-sustaining
treatments (LST) at the end of life is difficult and ethically sensitive. Little is understood about …

New persistent opioid use among adolescents and young adults with sarcoma

MP Beauchemin, RR Raghunathan, MK Accordino… - Cancer, 2022 - Wiley Online Library
Background Adolescents and young adults (AYA) with sarcoma experience both acute and
chronic pain related to their disease and treatment. Studies in older adults have reported a …

Palliative care for pediatric intensive care patients and families

CB Rothschild, SF Derrington - Current opinion in pediatrics, 2020 - journals.lww.com
Palliative care for pediatric intensive care patients and fa... : Current Opinion in Pediatrics
Palliative care for pediatric intensive care patients and families : Current Opinion in Pediatrics …

A shared decision-making model in pediatric palliative care: a qualitative study of healthcare providers

S Cai, L Cheng, R Wang, X Zhou, X Peng - BMC Palliative Care, 2023 - Springer
Background Pediatric shared decision-making (SDM) is a fundamental part of family-
centered care. Pediatric palliative care (PPC) is one of the more difficult fields for healthcare …

Incorporating parental values in complex paediatric and perinatal decisions

R Geurtzen, DJC Wilkinson - The Lancet Child & Adolescent Health, 2024 - thelancet.com
Incorporating parental values in complex medical decisions for young children is important
but challenging. In this Review, we explore what it means to incorporate parental values in …

Palliative team involvement in end-of-life care for Jewish and Muslim children in Jerusalem: A unique clinical and cultural context

AR Shack, I Fried… - Palliative & Supportive …, 2024 - cambridge.org
ObjectivesPediatric palliative care services improve the quality of life for children with life-
limiting and life-threatening diseases, although little has been published about variation …

Making sense of harms and benefits: Assessing the numeric presentation of risk information in ACOG obstetrical clinical practice guidelines

H Foggin, JA Hutcheon, J Liauw - Patient Education and Counseling, 2022 - Elsevier
Objective To assess the presentation of risk information in American College of Obstetricians
and Gynecologists (ACOG) obstetrical Practice Bulletins. Methods We reviewed B-and C …