Recognizing cross-institutional fiscal and administrative barriers and facilitators to conducting community-engaged clinical and translational research

L Carter-Edwards, ME Grewe, AM Fair… - Academic …, 2021 - journals.lww.com
Purpose This qualitative study examined fiscal and administrative (ie, pre-and post-award
grants process) barriers and facilitators to community-engaged research among …

Training Indigenous Community Researchers for Community-Based Participatory Ethnographic Dementia Research: A Second-Generation Model

M Blind, K Jacklin, K Pitawanakwat… - … journal of qualitative …, 2023 - journals.sagepub.com
Conducting community-based participatory research (CBPR) is a complex endeavor,
particularly when training non-academic community members. Though examples of CBPR …

[HTML][HTML] Increasing research capacity in community organizations: Findings from the Community Research Scholars Initiative

C Collins, J Dolata, E Pike, A Sehgal - Evaluation and program planning, 2023 - Elsevier
Increasing research capacity in community-based organizations (CBOs) can equip the
organizations to be more equal partners in academic/community partnerships and can help …

Untapped potential? Action by non-governmental organisations on the social determinants of mental health in high-income countries: an integrative review

J Cresswell-Smith, AK Macintyre… - Voluntary sector …, 2021 - bristoluniversitypressdigital.com
Civil society in general is widely recognised as having an important role in addressing the
social determinants of health. Non-governmental organisations (NGOs) have a long history …

Patient powered research: an approach to building capacity for a hardly reached patient population to engage in cancer research

M Charlot, K Carolan, C Gawuga, E Freeman… - Research involvement …, 2021 - Springer
Background Participating in clinical trials is a metric of high-quality cancer care and
improves survival. However, Black individuals with cancer are less likely to be enrolled in …

“It has to be designed in a way that really challenges people's assumptions”: preparing scholars to build equitable community research partnerships

CT Yan, S Haque, D Chassler, R Lobb… - Journal of Clinical and …, 2021 - cambridge.org
Introduction: Clinical and Translational Award (CTSA) programs are developing relevant
training for researchers and community stakeholders participating in community-engaged …

Collaboration and context in the design of community-engaged research training

L Ziegahn, Y Joosten, L Nevarez… - Health promotion …, 2021 - journals.sagepub.com
Collaboration between academic researchers and community members, clinicians, and
organizations is valued at all levels of the program development process in community …

Evaluation of parent and youth experiences in advisory groups as part of a mental healthcare clinical trial: protocol for a mixed-method study

J Rasiah, S Freedman, L Macdonald, K Prisnie… - BMJ open, 2022 - bmjopen.bmj.com
Introduction Patient engagement in healthcare research is a necessity to ensure that
research objectives align with priorities, outcomes and needs of the population under study …

considerations for ethical incentives in research

KY Greene, B Brown - Medicine, Health Care and Philosophy, 2023 - Springer
(Polonijo et al., 2022). We argue that community members should be at the forefront of this
decision-making, as community members offer experiential expertise that cannot be found …

[HTML][HTML] Protocol: Evaluation of parent and youth experiences in advisory groups as part of a mental healthcare clinical trial: protocol for a mixed-method study

J Rasiah, S Freedman, L Macdonald, K Prisnie… - BMJ Open, 2022 - ncbi.nlm.nih.gov
Introduction Patient engagement in healthcare research is a necessity to ensure that
research objectives align with priorities, outcomes and needs of the population under study …