Despite the plethora of empirical studies conducted to date, debate continues about whether
and to what extent results should be returned to participants of genomic research. We aimed …

Simple Summary Pancreatic cancer (PCa) is a highly aggressive and deadly form of cancer
with a low five-year survival rate. This paper explores the role of pharmacologic …

The majority of biobank policies and consent forms do not address post-mortem use of data
for medical research, thus causing uncertainty after research participants' death. This …

The increasing use of genomic sequencing in research means secondary findings (SF) is
more frequently detected and becoming a more pressing issue for researchers. This is …

Background Consent for data research in acute and critical care is complex as patients
become at least temporarily incapacitated or die. Existing guidelines and regulations in the …

As ambitions to 'mainstream'genetic and genomic medicine in the UK advance, patients are
increasingly exposed to information about genomic data. Unlike the results of many other …

Background Protecting the privacy of research participants is widely recognized as one of
the standard ethical requirements for clinical research. It is unknown, however, how …

Background This study examined and compared the attitudes and willingness of guardians
of children with cancer and adult cancer patients toward donating biospecimens and clinical …

In the genomic era, the availability of gene panel and whole genome/exome sequencing is
rapidly increasing. Opportunities for providing former patients with new genetic information …

There has been little discussion of the way genomic research results should be returned and
how to obtain informed consent for this. We systematically searched the empirical literature …