A call for action: recommendations to improve transition to adult care for youth with complex health care needs

A Toulany, J Willem Gorter… - Paediatrics & child …, 2022 - academic.oup.com
Youth with complex health care needs, defined as those requiring specialized health care
and services for physical, developmental, and/or mental health conditions, are often cared …

Quality indicators for youth transitioning to adult care: a systematic review

K Bailey, S Lee, T de Los Reyes, L Lo, K Cleverley… - …, 2022 - publications.aap.org
BACKGROUND AND OBJECTIVE Transition from pediatric to adult care is associated with
adverse health outcomes for many adolescents with chronic illness. We identified quality …

The perspectives of stakeholders of intellectual disability liaison nurses: a model of compassionate, person‐centred care

M Brown, Z Chouliara, J MacArthur… - Journal of Clinical …, 2016 - Wiley Online Library
Aims and objectives To investigate the experiences of patients with intellectual disabilities,
family and paid carers regarding the role of liaison nurses and the delivery of …

Transition from child to adult health services: a qualitative study of the views and experiences of families of young adults with intellectual disabilities

M Brown, A Higgins, J MacArthur - Journal of Clinical Nursing, 2020 - Wiley Online Library
Aims and objectives To explore the experiences of the families of young adults with
intellectual disabilities at the point of transition from child to adult health services …

Transitioning between paediatric and adult healthcare services: a qualitative study of the experiences of young people with spinal cord injuries and parents/caregivers

EA Bray, Y Salamonson, B Everett, A George… - BMJ open, 2022 - bmjopen.bmj.com
Objectives Healthcare transition (HCT) interventions are pivotal to paediatric rehabilitation.
However, there has been limited research focusing on HCT in young people with spinal cord …

Improving the transition process to independent living for adolescents with profound intellectual disabilities. Experiences of parents and employees

E Roos, E Søndenaa - BMC health services research, 2020 - Springer
Background The transition process from the family home to independent living for young
adults with profound intellectual disability (PID) becomes delayed. Those families face …

[HTML][HTML] Barriers to the access of people with disabilities to health services: a scoping review

KAP Clemente, SV Silva, GI Vieira… - Revista de Saúde …, 2022 - SciELO Public Health
ABSTRACT OBJECTIVE To analyze the scientific evidence regarding barriers to the access
of people with disabilities to health services. METHODS A scoping review was carried out …

Swedish registered nurses' perceptions of caring for patients with intellectual and developmental disability: A qualitative descriptive study

M Appelgren, K Persson, C Bahtsevani… - Health & Social Care …, 2022 - Wiley Online Library
Patients with intellectual and developmental disability (IDD) are often misinterpreted and
misunderstood. Studies show that, in general, healthcare professionals have limited …

A commentary on the healthcare transition policy landscape for youth with disabilities or chronic health conditions, the need for an inclusive and equitable approach …

L Nguyen, C Dawe-McCord, M Frost… - Frontiers in …, 2023 - frontiersin.org
There is a growing number of youth with healthcare needs such as disabilities or chronic
health conditions who require lifelong care. In Canada, transfer to the adult healthcare …

[HTML][HTML] The transition from child to adult health services for young adults with intellectual disabilities: an evaluation of a pilot of an online learning resource for …

M Brown, J MacArthur, M Truesdale… - Nurse Education in …, 2022 - Elsevier
Aim This study formed the third phase of a national study on the experience of transition from
child to adult health services for young adults with intellectual disabilities. The aim of this …