Action priorities to facilitate planning of the transition to adulthood of young people with profound intellectual disability

C Gauthier-Boudreault, F Gallagher… - International Journal of …, 2024 - Taylor & Francis
Objectives It is essential for parents and professionals to be engaged in identifying and
developing solutions that facilitate the transition to adulthood of young people with profound …

School bells are ringing, but can parents attend? Responses from employed parents of children with SEND

A Stefanidis, ME King-Sears… - Community, Work & …, 2023 - Taylor & Francis
This study's purpose is to examine the work-family conflict of employed parents of children
with special educational needs and disabilities (SEND) and those parents' engagement in …

Reasons for Encounters and Comorbidities in Adolescents with Intellectual Disability in General Practice: A Retrospective Analysis of Data from the Ask Study

M Song, TTA Le, S Denny, NG Lennox, L McPherson… - Children, 2023 - mdpi.com
Adolescents with intellectual disability have substantial health needs. This retrospective
analysis of data from the Ask Study describes reasons for primary care encounters and the …

Enabling Dominic's voice and participation through the cocreation of an 'I am'Digital Story for supporting his post‐19 transition from special school to adult social care

C Barron, S Parsons, H Kovshoff - British Journal of Learning …, 2024 - Wiley Online Library
Background Transitions into adult services for young people with complex communication
needs are often experienced as challenging and rarely include the voices of young people …

Dietitians' endeavor to contribute to the nutritional health of children and youth with intellectual disability and autism

P Adolfsson, J Hysing, P Ek - International Journal of …, 2023 - Taylor & Francis
The aim of the present study was to explore the experiences of registered dietitians (RD)
who consult children and youth with intellectual disability (ID) and autism. Another aim was …

Caregiver experiences with transitions from pediatric to adult healthcare for children with complex care needs

L MacNeill, S Doucet, A Luke - Child: Care, Health and …, 2022 - Wiley Online Library
Background Caring for a youth with complex care needs (CCN) who is transitioning from
paediatric to adult healthcare can produce many challenges. For example, caregivers must …

Appel à l'action: des recommandations pour améliorer la transition des jeunes ayant des besoins de santé complexes vers les soins aux adultes

A Toulany, J Willem Gorter… - Paediatrics & Child …, 2022 - academic.oup.com
Les jeunes qui ont des besoins de santé complexes, définis comme ceux qui nécessitent
des soins et services spécialisés en raison d'affections physiques, développementales ou …

Transitions Pop-ups: Co-designing client-centred support for disabled youth transitioning to adult life

Y Seko, A Oh, L Thompson, LR Bowman… - Frontiers in …, 2024 - frontiersin.org
Background When transitioning to adulthood, youth with disabilities and their families face
many service gaps. Successful inter-agency collaborations can promote family-centred …

General practice experiences for parents of children with intellectual disability: a systematic review

N Thomas, H Atherton, J Dale, K Smith, H Crawford - BJGP open, 2023 - bjgpopen.org
Background Parents of children diagnosed with intellectual disability are at increased risk of
mental and physical health difficulties compared with other parents. They are likely to …

Do demographic, and clinical characteristics influence meeting NICE quality standards for young people transitioning to adult intellectual disability services?

P Soper, AG Stewart, R Nathan… - Advances in Mental …, 2022 - emerald.com
Purpose This study aims to evaluate the quality of transition from child and adolescent
services to adult intellectual disability services, using the relevant National Institute for …