'You have a little human being kicking inside you and an unbearable pain of knowing there will be a void at the end': A meta-ethnography exploring the experience of …

MJ Tatterton, MJ Fisher - Palliative Medicine, 2023 - journals.sagepub.com
Background: Parents of babies diagnosed with life limiting conditions in the perinatal period
face numerous challenges. Considerations include the remainder of the pregnancy, delivery …

Shared responsibility for decision-making in NICU: A scoping review

HK Pellikka, A Axelin, U Sankilampi… - Nursing …, 2023 - journals.sagepub.com
Background Shared responsibility is an essential part of family-centred care and it
characterizes the relationship between parents and healthcare professionals. Despite this …

[HTML][HTML] Conversations about end-of-life decisions in neonatology: do doctors and parents implement shared decision-making?

ES Schouten, MF Beyer, AW Flemmer… - Frontiers in …, 2022 - frontiersin.org
Introduction: Advances in perinatal medicine have contributed to significantly improved
survival of newborns. While some infants die despite extensive medical treatment, a larger …

[HTML][HTML] Exploring the medical decision-making patterns and influencing factors among the general Chinese public: a binary logistic regression analysis

Y Lyu, Q Xu, J Liu - BMC Public Health, 2024 - Springer
Objective With the ongoing evolution of the healthcare system and shifts in cultural
paradigms, there is a pressing need to delve into the medical decision-making behaviors of …

Public Attitudes Toward Ethics and Practices in End-of-Life Decision-Making for Neonates

K Schneider, S Roll, T Tissen-Diabaté… - JAMA Network …, 2024 - jamanetwork.com
Importance Attitudes toward end-of-life decision-making in neonatology have been studied
in physicians and other health care professionals and are mostly shaped by their clinical …

[HTML][HTML] Fresh Parent's Own Milk for Preterm Infants: Barriers and Future Opportunities

CE Briere, J Gomez - Nutrients, 2024 - mdpi.com
While direct at-the-breast feeding is biologically optimal, Neonatal Intensive Care Unit
(NICU) admission due to infant immaturity or illness often necessitates the expression and …

[HTML][HTML] The use of projected autonomy in antenatal shared decision-making for periviable neonates: a qualitative study

MJ Thorvilson, K Carroll, BD Kaemingk… - Maternal Health …, 2023 - Springer
Background In this study, we assessed the communication strategies used by
neonatologists in antenatal consultations which may influence decision-making when …

Uncertainty associated with parents of preterm infants hospitalised in neonatal intensive care unit among selected governmental hospitals in Addis Ababa, Ethiopia …

BD Tilahun, G Yilak, N Amena, BB Abate, A Fantahun… - BMJ open, 2024 - bmjopen.bmj.com
Objective To assess the uncertainty associated with parents of preterm infants hospitalised
in neonatal intensive care units of selected governmental hospitals in Addis Ababa …

[HTML][HTML] Extending the concept of moral distress to parents of infants hospitalized in the NICU: a qualitative study in Greece

P Voultsos, M Arabatzi, M Deligianni, AK Tsaroucha - BMC psychology, 2024 - Springer
Background The hospitalization of infants in the neonatal intensive care unit (NICU) is an
ethically challenging situation. A limited number of studies have extended the concept of …

Shifting paradigms: A collective and structural strategy for addressing healthcare inequity

S Monteiro, A Acai, R Kahlke, TM Chan… - Journal of Evaluation …, 2024 - Wiley Online Library
Healthcare inequity is a persistent systemic problem, yet many solutions have historically
focused on “debiasing” individuals. Individualistic strategies fit within a competency‐based …