Paediatric end‐of‐life care needs in Switzerland: current practices, and perspectives from parents and professionals. A study protocol

E Bergstraesser, K Zimmermann… - Journal of advanced …, 2015 - Wiley Online Library
Aim To present a protocol for a multi‐phase study about the current practice of end‐of‐life
care in paediatric settings in Switzerland. Background In Switzerland, paediatric palliative …

Quality of paediatric hospice care for children with and without multiple complex chronic conditions

LC Lindley, J Keim-Malpass - International Journal of …, 2017 - magonlinelibrary.com
Background: Hospice care for children with multiple complex chronic conditions (MCCC) is
complicated given their unique health at the end of life (EOL). Little is known about the …

Care of the complex chronically ill child by generalist pediatricians: lessons learned from pediatric palliative care

JK Walter, LR DeCamp, KS Warrier… - Hospital …, 2013 - publications.aap.org
Background and Objective: Parents of children with complex chronic conditions report
fragmented care, unmet medical needs, and financial strain from health care costs. The aim …

The needs of professionals in the palliative care of children and adolescents

E Bergstraesser, S Inglin, R Abbruzzese… - European journal of …, 2013 - Springer
The main objectives of this qualitative study were to describe the perceptions and needs of
pediatric health care professionals (HCPs) taking care of children with palliative care needs …

A good death in the child with life shortening illness: A qualitative multiple-case study

PH Chong, C Walshe, S Hughes - Palliative Medicine, 2021 - journals.sagepub.com
Background: Understanding what makes a 'good death'in the child with life shortening
illness is important, as it informs appropriate and effective end-of-life care. Above play, peer …

Children enrolled in hospice care under commercial insurance: a comparison of different age groups

LC Lindley, AC Cohrs… - American Journal of …, 2019 - journals.sagepub.com
Background: Although most children at end of life have commercial insurance, little is known
about their demographic and clinical characteristics, what care they are receiving, and how …

The experience of decision making in the care of children with palliative care needs: the experiences of Jordanian mothers

M Atout, P Hemingway, J Seymour - Comprehensive child and …, 2017 - Taylor & Francis
The purpose of this study was to explore the experience of decision making in the care of
children with palliative care needs in Jordan, from the perspective of their mothers. This …

Healthcare users' experiences of communicating with healthcare professionals about children who have life-limiting conditions: a qualitative systematic review

S Ekberg, NK Bradford, A Herbert… - Journal of palliative …, 2018 - liebertpub.com
Background: Globally, an estimated eight million children could benefit from palliative care
each year. Effective communication about children with life-limiting conditions is well …

“We just follow the patients' lead”: Healthcare professional perspectives on the involvement of teenagers with cancer in decision making

E Day, L Jones, R Langner, LC Stirling… - Pediatric blood & …, 2018 - Wiley Online Library
Purpose We report on an in‐depth interview and participant observation study that uses data
from multiple sources to determine how the involvement of teenagers with leukaemia is …

Continuous deep sedation and euthanasia in pediatrics: does one really exclude the other for terminally ill patients?

DO Badarau, E De Clercq… - The Journal of Medicine …, 2019 - academic.oup.com
Debates on morally acceptable and lawful end-of-life (EOL) practices in pediatrics were
reignited by the recent amendment in Belgian law to allow euthanasia for minors of any age …