Aim: The aim of the research was to identify and describe the problems and experiences of
family members caring for children with life-threatening or life-limiting diseases from …

Objective To develop and face-validate population-level indicators for potential
appropriateness of end-of-life care, for children with cancer, neurologic conditions, and …

Background: In children's palliative care, the term “respite” refers to a temporary break
offered to primary caregivers of a child with a life-limiting illness. The aim of this study was to …

In this article, we discuss how to incorporate the perspectives of children and adolescents
with life-limiting conditions into qualitative research studies by actively involving these …

Abstract Background In 2007, the European Association of Palliative Care (EAPC) provided
a comprehensive set of recommendations and standards for the provision of adequate …

This study aimed to identify parental needs for pediatric palliative care and obtain their
opinions on developing pediatric palliative care in South Korea. This qualitative research …

Objectives The unmet palliative care need is intensified in resource-limited countries where
there is inequitable access to healthcare and adolescents and young adults (AYA) fall …

This chapter provides insight into the international literature on children's palliative care, with
a particular focus on children with intellectual disabilities. Key issues addressed include the …

Objective The objective of this study was to measure the appropriateness of end-of-life care
for children who died with neurologic conditions. Study design Based on linked routinely …

Adolescent and Young Adult (AYA) oncology is an internationally recognized established
subspecialty in cancer care. Dedicated programs tailored to local environments endeavor to …