Pediatric neuropalliative care

Z HarnEnz, P Vermilion, A Foster-Barber… - Handbook of Clinical …, 2023 - Elsevier
Pediatric palliative care seeks to support quality of life for children and families affected by
serious illness. Children with neurological disease are among the most frequent recipients …

Paediatric end‐of‐life care in the home care setting (PELICAN HOME)–a mixed methods study protocol

K Eskola, E Bergstraesser… - Journal of advanced …, 2015 - Wiley Online Library
Aims (a) To explore parental experiences and needs during their child's end‐of‐life care at
home;(b) to explore patient's characteristics and current provision of paediatric end‐of‐life …

Inborn errors of metabolism in palliative care

N Harputluoğlu, M Köse, Ü Yılmaz… - Pediatrics …, 2021 - Wiley Online Library
Background In parallel with the increase in the number of children with life‐limiting or life‐
threatening diseases, the need for and right to pediatric palliative care is also increasing …

Family-focused children's end of life care in hospital and at home

H Parker, M Farrell, A Ryder, K Fernley… - Nursing children and …, 2014 - journals.rcni.com
An increasing number of children and young people require end of life care, and providing
them and their families with optimum support at this time is crucial. This article describes …

Influence of palliative care on medical treatment of pediatric patients with complex chronic diseases at cook children's medical center

RP Seddighzadeh, K Lawrence, T Hamby… - Journal of Palliative …, 2018 - liebertpub.com
Background: Literature in adult palliative care (PC) boasts fewer invasive procedures,
shorter lengths of stay, and decreased cost of care. Benefits of pediatric PC are under …

Planning for paediatric palliative care services in Queensland: Characteristics, demographics and health needs of children and young people with life-limiting …

AP Bowers - 2020 - eprints.qut.edu.au
This thesis provides detailed estimates of the number of children and young people aged 0
to 21 years living in Queensland who are eligible for palliative care and presents a …

Evaluation der spezialisierten ambulanten pädiatrischen Palliativversorgung in Niedersachsen–Eine qualitative Studie zur Elternsicht

K Kremeike, A Mohr, J Nachtmann… - Das …, 2016 - thieme-connect.com
Hintergrund: Seit 2007 besteht in Deutschland der gesetzliche Anspruch auf eine
spezialisierte ambulante pädiatrische Palliativversorgung (SAPPV). Mit der Etablierung …

Descripción y análisis del proceso de atención de niños incluidos en programas de cuidados paliativos pediátricos: Estudio Cualitativo

P Rico Mena - 2024 - burjcdigital.urjc.es
Introducción: Los cuidados paliativos pediátricos (CPP) son un enfoque de atención dirigido
a niños y adolescentes con enfermedades limitantes, amenazantes para la vida o …

[引用][C] 临终患儿父母护理需求的研究现状

吴筱筱, 陈京立 - 中华护理杂志, 2013

[PDF][PDF] Ar turėtų nepagydoma onkologine liga sergantis paauglys žinoti savo ligos diagnozę ir baigtį? Tėvų patirtis ir požiūris

R Butkevičienė, I Pudžemienė - Socialinis darbas. Patirtis ir metodai, 2012 - vdu.lt
Šiame straipsnyje pateiktos analizės tikslas–atskleisti tėvų, prižiūrėjusių (pri žiūrinčių) savo
nepagydoma liga sergančius paauglius, patirtį ir požiūrį į vaiko informavimą apie ligą ir jos …