Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data
Addressing Indigenous rights and interests in genetic resources has become increasingly
challenging in an open science environment that promotes unrestricted access to genomic …
challenging in an open science environment that promotes unrestricted access to genomic …
Data management in health-related research involving indigenous communities in the United States and Canada: A scoping review
RB Woodbury, JA Beans, VY Hiratsuka… - Frontiers in …, 2019 - frontiersin.org
Background: Multiple factors, including experiences with unethical research practices, have
made some Indigenous groups in the United States and Canada reticent to participate in …
made some Indigenous groups in the United States and Canada reticent to participate in …
Extending research protections to tribal communities
B Saunkeah, JA Beans, MT Peercy… - The American Journal …, 2021 - Taylor & Francis
The history of research in American Indian/Alaska Native (AI/AN) communities has been
marked by unethical practices, resulting in mistrust and reluctance to participate in research …
marked by unethical practices, resulting in mistrust and reluctance to participate in research …
COVID-19 and food insecurity in the Blackfeet Tribal Community
NA John-Henderson, BJ Oosterhoff, LR Johnson… - Food Security, 2022 - Springer
To examine the impact of the COVID-19 pandemic on food insecurity in the Blackfeet
American Indian Tribal Community. American Indian adults residing on the Blackfeet …
American Indian Tribal Community. American Indian adults residing on the Blackfeet …
Implementing community-engaged pharmacogenomics in Indigenous communities
Innovative pharmacogenomic approaches (genetic variation related to medication
response) are needed to reduce disease and disparities in Indigenous communities. We …
response) are needed to reduce disease and disparities in Indigenous communities. We …
Formative research to design and evaluate caring text messages for American Indian and Alaska native youth, college students, and veterans
C Caughlan, A Kakuska, J Manthei… - Health Promotion …, 2024 - journals.sagepub.com
Purpose. Caring Text Messages (CTM) is an evidence-based intervention, developed by the
Northwest Portland Area Indian Health Board, modeled after the Caring Contacts (CC) …
Northwest Portland Area Indian Health Board, modeled after the Caring Contacts (CC) …
[HTML][HTML] Promoting informed decision-making in a primary care practice by implementing decision aids
CL Lewis, MP Pignone - North Carolina medical journal, 2009 - ncbi.nlm.nih.gov
Empowering patients to be effective advocates for their health requires that they have
adequate information and understanding about their health conditions. Many patients have …
adequate information and understanding about their health conditions. Many patients have …
Teacher and Caregiver Perspectives on Water Is K'é: An Early Child Education Program to Promote Healthy Beverages among Navajo Children
CB Kahn, B John, SS Shin, R Whitman… - International Journal of …, 2023 - mdpi.com
The Water is K'é program was developed to increase water consumption and decrease
consumption of sugar-sweetened beverages for young children and caregivers. The pilot …
consumption of sugar-sweetened beverages for young children and caregivers. The pilot …
Community perspectives on communicating about precision medicine in an Alaska native tribal health care system
RB Woodbury, JA Beans, KA Wark, P Spicer… - Frontiers in …, 2020 - frontiersin.org
Background: Precision medicine seeks to better tailor medical care to the needs of individual
patients, but there are challenges involved in communicating to patients, health care …
patients, but there are challenges involved in communicating to patients, health care …
Indigenous Elder-centered methodology: research that decolonizes and indigenizes
MC Crouch, SM Kim, Z Asquith-Heinz… - AlterNative: An …, 2023 - journals.sagepub.com
Indigenous research posits that practice-based evidence is fundamental to culturally
grounded, multifaceted methods. The objective is to outline the key tenets and …
grounded, multifaceted methods. The objective is to outline the key tenets and …