Rights, interests and expectations: Indigenous perspectives on unrestricted access to genomic data

M Hudson, NA Garrison, R Sterling, NR Caron… - Nature Reviews …, 2020 - nature.com
Addressing Indigenous rights and interests in genetic resources has become increasingly
challenging in an open science environment that promotes unrestricted access to genomic …

Data management in health-related research involving indigenous communities in the United States and Canada: A scoping review

RB Woodbury, JA Beans, VY Hiratsuka… - Frontiers in …, 2019 - frontiersin.org
Background: Multiple factors, including experiences with unethical research practices, have
made some Indigenous groups in the United States and Canada reticent to participate in …

Extending research protections to tribal communities

B Saunkeah, JA Beans, MT Peercy… - The American Journal …, 2021 - Taylor & Francis
The history of research in American Indian/Alaska Native (AI/AN) communities has been
marked by unethical practices, resulting in mistrust and reluctance to participate in research …

COVID-19 and food insecurity in the Blackfeet Tribal Community

NA John-Henderson, BJ Oosterhoff, LR Johnson… - Food Security, 2022 - Springer
To examine the impact of the COVID-19 pandemic on food insecurity in the Blackfeet
American Indian Tribal Community. American Indian adults residing on the Blackfeet …

Implementing community-engaged pharmacogenomics in Indigenous communities

KG Claw, CR Dorr, EL Woodahl - nature communications, 2024 - nature.com
Innovative pharmacogenomic approaches (genetic variation related to medication
response) are needed to reduce disease and disparities in Indigenous communities. We …

Formative research to design and evaluate caring text messages for American Indian and Alaska native youth, college students, and veterans

C Caughlan, A Kakuska, J Manthei… - Health Promotion …, 2024 - journals.sagepub.com
Purpose. Caring Text Messages (CTM) is an evidence-based intervention, developed by the
Northwest Portland Area Indian Health Board, modeled after the Caring Contacts (CC) …

[HTML][HTML] Promoting informed decision-making in a primary care practice by implementing decision aids

CL Lewis, MP Pignone - North Carolina medical journal, 2009 - ncbi.nlm.nih.gov
Empowering patients to be effective advocates for their health requires that they have
adequate information and understanding about their health conditions. Many patients have …

Teacher and Caregiver Perspectives on Water Is K'é: An Early Child Education Program to Promote Healthy Beverages among Navajo Children

CB Kahn, B John, SS Shin, R Whitman… - International Journal of …, 2023 - mdpi.com
The Water is K'é program was developed to increase water consumption and decrease
consumption of sugar-sweetened beverages for young children and caregivers. The pilot …

Community perspectives on communicating about precision medicine in an Alaska native tribal health care system

RB Woodbury, JA Beans, KA Wark, P Spicer… - Frontiers in …, 2020 - frontiersin.org
Background: Precision medicine seeks to better tailor medical care to the needs of individual
patients, but there are challenges involved in communicating to patients, health care …

Indigenous Elder-centered methodology: research that decolonizes and indigenizes

MC Crouch, SM Kim, Z Asquith-Heinz… - AlterNative: An …, 2023 - journals.sagepub.com
Indigenous research posits that practice-based evidence is fundamental to culturally
grounded, multifaceted methods. The objective is to outline the key tenets and …