Family characteristics and childcare patterns associated with early social functioning in cancer‐bereaved parents

JM Snaman, L Chen, E Mazzola, G Helton, D Feifer… - Cancer, 2024 - Wiley Online Library
Background Bereaved parents experience life‐long grief after the death of their child from
cancer. Parents who can integrate their grief and maintain their social functioning early in …

Weathering the storm when the end of the road is near: A qualitative analysis of supportive care needs during CAR T‐cell therapy in pediatrics

A Steineck, SK Silbert, K Palm, J Nepper… - Pediatric Blood & …, 2024 - Wiley Online Library
Background Chimeric antigen receptor (CAR) T‐cell therapy provides promising outcomes
in relapsed/refractory B acute lymphoblastic leukemia (ALL), yet still carries high toxicity …

Partnering With Parents to Dismantle “Good-Death” Narratives

EG Broden, S McCarthy, JM Snaman - JAMA pediatrics, 2024 - jamanetwork.com
The notion of a “good death” is pervasive but intensely problematic, especially in pediatrics.
This concept arose in the 1970s in response to highly medicalized deaths that neglected …

“At Least I Can Push this Morphine”: PICU Nurses' Approaches to Suffering Among Dying Children

EG Broden, IJ Eche-Ugwu, DD DeCourcey… - Journal of pain and …, 2024 - Elsevier
Context Parents of children who die in the pediatric intensive care unit (PICU) carry
memories of their child's suffering throughout a lifelong grieving experience. Given their …

“Palliative Intensive Care” at the End of a Child's Life

AS Porter, SR Gouda, EG Broden… - Hospital …, 2023 - publications.aap.org
Robbie is a 9-year-old boy with metastatic osteosarcoma, recently found to have significant
disease progression with bilateral pulmonary involvement and diffuse bony pain. When his …

Children with cancer: Are we healing the body & missing the mind?

SS Datta - Indian Journal of Medical Research, 2023 - journals.lww.com
A large proportion of the global paediatric cancer burden is from low-and middle-income
countries (LMICs) 1. Over the past three decades, the fiveyear outcome of paediatric cancer …

Respecting Spirituality During Extubations: Holding Space for Miracles and Legacy with Reactive Comfort Plans

A Morvant, D Mauser, J Moriarty, M Norvell… - Journal of Pain and …, 2024 - Elsevier
Outcomes 1. Upon successful completion, participants will be able to grasp the concept of
holding space for miracles during discontinuation of life-sustaining therapies. 2. Upon …

Preparing for the Unimaginable: How Pediatric ICU Nurses Prepare Families for the Dying Process

EG Broden, IJ Eche-Ugwu, DD DeCourcey… - Journal of Pain and …, 2024 - jpsmjournal.com
Outcomes 1. Identify key actions that help prepare families for the dying process. 2. Consider
how the defined key actions may apply to other settings of practice. Key Message Preparing …

[引用][C] Parental regret in pediatric oncology: What are we measuring?

B Sisk - Pediatric blood & cancer, 2023 - pubmed.ncbi.nlm.nih.gov