[HTML][HTML] The impact of lockdown during the COVID-19 pandemic on mental and social health of children and adolescents

MAJ Luijten, MM van Muilekom, L Teela… - Quality of Life …, 2021 - Springer
Purpose During the COVID-19 pandemic in the Netherlands, governmental regulations
resulted in a lockdown for adults as well as children/adolescents. Schools were closed and …

[HTML][HTML] Healthcare provider characteristics that influence the implementation of individual-level patient-centered outcome measure (PROM) and patient-reported …

AC Wolff, A Dresselhuis, S Hejazi, D Dixon, D Gibson… - Systematic reviews, 2021 - Springer
Background Substantial literature has highlighted the importance of patient-reported
outcome and experience measures (PROMs and PREMs, respectively) to collect clinically …

[HTML][HTML] Implementation of child-centred outcome measures in routine paediatric healthcare practice: a systematic review

HM Scott, D Braybrook, D Harðardóttir… - Health and Quality of …, 2023 - Springer
Background Person-centred outcome measures (PCOMs) are commonly used in routine
adult healthcare to measure and improve outcomes, but less attention has been paid to …

[HTML][HTML] AmbuFlex: tele-patient-reported outcomes (telePRO) as the basis for follow-up in chronic and malignant diseases

LMV Schougaard, LP Larsen, A Jessen… - Quality of Life …, 2016 - Springer
Purpose A tele-patient-reported outcome (telePRO) model includes outpatients' reports of
symptoms and health status from home before or instead of visiting the outpatient clinic. In …

Paediatric health-related quality of life: what is it and why should we measure it?

L Haverman, PF Limperg, NL Young… - Archives of disease in …, 2017 - adc.bmj.com
As a paediatrician, you follow a number of children with chronic health conditions in your
practice. You provide them with a variety of therapies and would like to know whether your …

Real‐world implementation of electronic patient‐reported outcomes in outpatient pediatric cancer care

SA Schepers, SM Sint Nicolaas, L Haverman… - Psycho …, 2017 - Wiley Online Library
Objective The KLIK method is an online tool that monitors and discusses electronic patient‐
reported outcomes (ePROs), which has been shown to enhance outcomes. This study …

Parental distress 6 months after a pediatric cancer diagnosis in relation to family psychosocial risk at diagnosis

SA Schepers, SM Sint Nicolaas, H Maurice‐Stam… - Cancer, 2018 - Wiley Online Library
BACKGROUND This study was aimed at assessing fathers' and mothers' distress 6 months
after a pediatric cancer diagnosis and at determining whether this is related to the level of …

Health related quality of life of infants and children with avoidant restrictive food intake disorder

H Krom, L van der Sluijs Veer… - … Journal of Eating …, 2019 - Wiley Online Library
Objective The aim of this study was to compare health related quality of life (HRQOL) in
infants and children with avoidant restrictive food intake disorder (ARFID) to healthy and …

Review about the impact of growing up with a chronic disease showed delays achieving psychosocial milestones

H Maurice‐Stam, SL Nijhof, AS Monninkhof… - Acta …, 2019 - Wiley Online Library
Aim This review aimed to provide a comprehensive overview of the psychosocial
developmental trajectory of various diseases during childhood and adolescence. Methods …

[HTML][HTML] Factors affecting implementation of patient-reported outcome and experience measures in a pediatric health system

E McCabe, S Rabi, S Bele, JD Zwicker… - Journal of Patient …, 2023 - Springer
Background The use of patient-reported outcome measures (PROMs) and patient-reported
experience measures (PREMs) in pediatric clinical practice can enhance clinical care and …