[HTML][HTML] Roles, outcomes, and enablers within research partnerships: A rapid review of the literature on patient and public involvement and engagement in health …

AW Karlsson, A Kragh-Sørensen, K Børgesen… - Research involvement …, 2023 - Springer
Background Recent studies mention a need to investigate partnership roles and dynamics
within patient and public involvement and engagement (PPIE) in health research, and how …

[HTML][HTML] A rapid realist review of patient engagement in patient-oriented research and health care system impacts: part one

E Zibrowski, T Carr, S McDonald, H Thiessen… - Research Involvement …, 2021 - Springer
Background Patient-oriented research affords individuals with opportunities to genuinely
contribute to health care research as members of research teams. While checklists and …

[HTML][HTML] Designing a tool to support patient and public involvement in research projects: the Involvement Matrix

DW Smits, K Van Meeteren, M Klem, M Alsem… - Research involvement …, 2020 - Springer
Background Interest in patient involvement in research is growing. Research should rather
be 'with'or 'by'patients, and not only be 'about'or 'for'patients. Patients' active involvement in …

[HTML][HTML] The impact of patient involvement in research: a case study of the planning, conduct and dissemination of a clinical, controlled trial

PC Skovlund, BK Nielsen, HV Thaysen… - Research involvement …, 2020 - Springer
Background The interest in patient and public involvement (PPI) in health research is
increasing. However, the experience and knowledge of PPI throughout the entire research …

Care coordination of children with neurodevelopmental disabilities and medical complexity during the COVID‐19 pandemic: Caregiver experiences

G Currie, D Materula, N Gall, G Lachuk… - Child: Care, Health …, 2023 - Wiley Online Library
Background The COVID‐19 pandemic and subsequent public health restrictions created
significant challenges for children with neurodevelopmental disabilities with medical …

[HTML][HTML] A community collaborative for the exploration of local factors affecting Black mothers' experiences with perinatal care

AP Alio, T Dillion, S Hartman, TL Johnson… - Maternal and child …, 2022 - Springer
Objectives Black women face disparities in maternal morbidity and mortality when compared
to White women. Multiple factors contribute to these disparities. This study examines the …

Nothing about us without us: A co‐production strategy for communities, researchers and stakeholders to identify ways of improving health and reducing inequalities

A Albert, S Islam, M Haklay… - Health …, 2023 - Wiley Online Library
Introduction Co‐production with communities is increasingly seen as best practice that can
improve the quality, relevance and effectiveness of research and service delivery. Despite …

[HTML][HTML] Best practices and lessons learned for action research in eHealth design and implementation: literature review

K Oberschmidt, C Grünloh, F Nijboer… - Journal of Medical Internet …, 2022 - jmir.org
Background Action research (AR) is an established research framework to introduce change
in a community following a cyclical approach and involving stakeholders as coresearchers …

Scoping review of models and frameworks of patient engagement in health services research

AM Chudyk, T Horrill, C Waldman, L Demczuk… - BMJ open, 2022 - bmjopen.bmj.com
Objective To count and describe the elements that overlap (ie, present in two or more) and
diverge between models and frameworks of patient engagement in health services …

[HTML][HTML] Segurança do paciente no cuidado hospitalar: uma revisão sobre a perspectiva do paciente

VCFL Villar, SCM Duarte, M Martins - Cadernos de saúde pública, 2020 - SciELO Brasil
O objetivo foi revisar a literatura sobre os incidentes, eventos adversos e seus fatores
contribuintes no cuidado hospitalar, descritos segundo a perspectiva do paciente. Foi …