The International Network on Oesophageal Atresia (INoEA) consensus guidelines on the transition of patients with oesophageal atresia–tracheoesophageal fistula

U Krishnan, MW Dumont, H Slater, BD Gold… - Nature Reviews …, 2023 - nature.com
Oesophageal atresia–tracheoesophageal fistula (EA-TEF) is a common congenital digestive
disease. Patients with EA-TEF face gastrointestinal, surgical, respiratory, otolaryngological …

Long-term neurodevelopment in children born with esophageal atresia: a systematic review

CE van Hoorn, CA Ten Kate, AB Rietman… - Diseases of the …, 2021 - academic.oup.com
Background Although the survival rate of esophageal atresia (EA) has increased to over
90%, the risk of functional long-term neurodevelopmental deficits is uncertain. Studies on …

Establishment of a condition-specific quality-of-life questionnaire for children born with esophageal atresia aged 2–7 across 14 countries

International EA-QoL Group - Frontiers in Pediatrics, 2023 - frontiersin.org
Background Esophageal atresia (EA) is a rare congenital anomaly characterized by a
discontinuity of the esophagus. Following surgical repair, survival rates have improved …

Psychometric performance of a condition-specific quality-of-life instrument for Dutch children born with esophageal atresia

CA Ten Kate, H IJsselstijn, M Dellenmark-Blom… - Children, 2022 - mdpi.com
A condition-specific instrument (EA-QOL©) to assess quality of life of children born with
esophageal atresia (EA) was developed in Sweden and Germany. Before implementing this …

Longitudinal health status and quality of life after esophageal atresia repair

CA Ten Kate, AB Rietman… - Journal of Pediatric …, 2021 - journals.lww.com
Objectives: To longitudinally evaluate self-reported and proxy-reported health status (HS)
and quality of life (QoL) of school-aged children born with esophageal atresia (EA) …

The Chinese mandarin version of the esophageal-atresia-quality-of-life questionnaires for children and adolescents: evaluation of linguistic and content validity

S Li, M Dellenmark-Blom, Y Zhao, Y Gu, S Li… - International Journal of …, 2022 - mdpi.com
Background: After repair of esophageal atresia (EA), children risk digestive and respiratory
morbidity, but knowledge of their health-related quality of life (HRQOL) in China is lacking …

Postoperative morbidity and health-related quality of life in children with delayed reconstruction of esophageal atresia: a nationwide Swedish study

M Dellenmark-Blom, S Örnö Ax, E Öst… - Orphanet Journal of …, 2022 - Springer
Abstract Background In 10–15% of children with esophageal atresia (EA) delayed
reconstruction of esophageal atresia (DREA) is necessary due to long-gap EA and/or …

Reliability and validity of the Polish version of the esophageal-atresia-quality-of-life questionnaires to assess condition-specific quality of life in children and …

A Rozensztrauch, R Śmigiel, D Patkowski… - International Journal of …, 2022 - mdpi.com
Aim: This study reports the reliability and validity of the Polish version of the Esophageal
Atresia Quality of Life (EA-QOL) questionnaires, which were originally developed in Sweden …

Prevalence of mental health problems, associated factors, and health-related quality of life in children with long-gap esophageal atresia in Sweden

M Dellenmark-Blom, SÖ Ax, HE Lilja, C Reilly… - Journal of Pediatric …, 2023 - Elsevier
Background Children with long-gap esophageal atresia (LGEA) face a high risk of digestive
and respiratory morbidity, but their mental health outcomes have not been investigated. We …

[HTML][HTML] Feasibility, reliability, and validity of the Turkish version of the esophageal-atresia-quality-of-life questionnaires to assess condition-specific quality of life in …

T Soyer, UE Arslan, ÇU Durakbaşa… - The Turkish Journal …, 2021 - ncbi.nlm.nih.gov
Background: This study reports the feasibility, validity, and reliability of the Turkish versions
of the Esophageal-Atresia-Quality-of-Life (EA-QOL) questionnaires, which were originally …