A systematic review of reasons for gatekeeping in palliative care research
Background: When healthcare professionals or other involved parties prevent eligible
patients from entering a trial as a research subject, they are gatekeeping. This phenomenon …
patients from entering a trial as a research subject, they are gatekeeping. This phenomenon …
[HTML][HTML] The impact of the carer support needs assessment tool (CSNAT) in community palliative care using a stepped wedge cluster trial
SM Aoun, G Grande, D Howting, K Deas, C Toye… - PloS one, 2015 - journals.plos.org
Family caregiving towards the end-of-life entails considerable emotional, social, financial
and physical costs for caregivers. Evidence suggests that good support can improve …
and physical costs for caregivers. Evidence suggests that good support can improve …
[HTML][HTML] Family caregiver participation in palliative care research: challenging the myth
S Aoun, S Slatyer, K Deas, C Nekolaichuk - Journal of pain and symptom …, 2017 - Elsevier
Context Despite international guidelines emphasizing consumer-directed care and
autonomous decisions in research participation, there is a common myth that research can …
autonomous decisions in research participation, there is a common myth that research can …
Inviting parents to take part in paediatric palliative care research: a mixed-methods examination of selection bias
JC Crocker, E Beecham, P Kelly… - Palliative …, 2015 - journals.sagepub.com
Background: Recruitment to paediatric palliative care research is challenging, with high
rates of non-invitation of eligible families by clinicians. The impact on sample characteristics …
rates of non-invitation of eligible families by clinicians. The impact on sample characteristics …
Barriers and facilitators to recruitment in mental health services: care coordinators' expectations and experience of referring to a psychosis research trial
Objective High‐quality research trials are necessary to provide evidence for the effective
management of mental health difficulties, but successful recruitment can be challenging …
management of mental health difficulties, but successful recruitment can be challenging …
A screening tool for predicting gatekeeping behaviour
Aim To develop a typology and screening tool for gatekeeping behaviours by nurses
responsible for recruitment in palliative care research. Design Concurrent analysis. Method …
responsible for recruitment in palliative care research. Design Concurrent analysis. Method …
[HTML][HTML] The experience of palliative patients and their families of a family meeting utilised as an instrument for spiritual and psychosocial care: A qualitative study
Background This study explores the experience of palliative patients and their family
members of a family meeting model, utilised as an instrument for the provision of spiritual …
members of a family meeting model, utilised as an instrument for the provision of spiritual …
Methodological and ethical challenges while conducting qualitative research on spirituality and end of life in a Muslim context: a guide to novice researchers
Spirituality could be understood as a personal belief, a relation with sacred, divine
experience, a sense of purpose and meaning towards life, authenticity and connectedness …
experience, a sense of purpose and meaning towards life, authenticity and connectedness …
Exploring the quality of life at the end of life (QUAL-E) instrument with Australian palliative care hospital patients: hurdles and directions
A Wilkinson, S Slatyer, K McCullough… - Journal of Palliative …, 2014 - journals.sagepub.com
The provision of care that enhances the quality of life at the end of life is a fundamental goal
of palliative care services. This pilot study explored the application of the Quality of Life at …
of palliative care services. This pilot study explored the application of the Quality of Life at …
The family meeting addressing spiritual and psychosocial needs in a palliative care setting: usefulness and challenges to implementation
Introduction This study evaluated the use of a family meeting model to address the spiritual
needs of palliative patients and their family members in the context of two metropolitan …
needs of palliative patients and their family members in the context of two metropolitan …