A systematic review of reasons for gatekeeping in palliative care research

MC Kars, GJMW van Thiel, R van der Graaf… - Palliative …, 2016 - journals.sagepub.com
Background: When healthcare professionals or other involved parties prevent eligible
patients from entering a trial as a research subject, they are gatekeeping. This phenomenon …

[HTML][HTML] The impact of the carer support needs assessment tool (CSNAT) in community palliative care using a stepped wedge cluster trial

SM Aoun, G Grande, D Howting, K Deas, C Toye… - PloS one, 2015 - journals.plos.org
Family caregiving towards the end-of-life entails considerable emotional, social, financial
and physical costs for caregivers. Evidence suggests that good support can improve …

[HTML][HTML] Family caregiver participation in palliative care research: challenging the myth

S Aoun, S Slatyer, K Deas, C Nekolaichuk - Journal of pain and symptom …, 2017 - Elsevier
Context Despite international guidelines emphasizing consumer-directed care and
autonomous decisions in research participation, there is a common myth that research can …

Inviting parents to take part in paediatric palliative care research: a mixed-methods examination of selection bias

JC Crocker, E Beecham, P Kelly… - Palliative …, 2015 - journals.sagepub.com
Background: Recruitment to paediatric palliative care research is challenging, with high
rates of non-invitation of eligible families by clinicians. The impact on sample characteristics …

Barriers and facilitators to recruitment in mental health services: care coordinators' expectations and experience of referring to a psychosis research trial

S Bucci, I Butcher, S Hartley, ST Neil… - Psychology and …, 2015 - Wiley Online Library
Objective High‐quality research trials are necessary to provide evidence for the effective
management of mental health difficulties, but successful recruitment can be challenging …

A screening tool for predicting gatekeeping behaviour

A Snowden, J Young - Nursing Open, 2017 - Wiley Online Library
Aim To develop a typology and screening tool for gatekeeping behaviours by nurses
responsible for recruitment in palliative care research. Design Concurrent analysis. Method …

[HTML][HTML] The experience of palliative patients and their families of a family meeting utilised as an instrument for spiritual and psychosocial care: A qualitative study

HM Tan, A Wilson, I Olver, C Barton - BMC palliative care, 2011 - Springer
Background This study explores the experience of palliative patients and their family
members of a family meeting model, utilised as an instrument for the provision of spiritual …

Methodological and ethical challenges while conducting qualitative research on spirituality and end of life in a Muslim context: a guide to novice researchers

N Lalani, G Ali - International Journal of Palliative Nursing, 2020 - magonlinelibrary.com
Spirituality could be understood as a personal belief, a relation with sacred, divine
experience, a sense of purpose and meaning towards life, authenticity and connectedness …

Exploring the quality of life at the end of life (QUAL-E) instrument with Australian palliative care hospital patients: hurdles and directions

A Wilkinson, S Slatyer, K McCullough… - Journal of Palliative …, 2014 - journals.sagepub.com
The provision of care that enhances the quality of life at the end of life is a fundamental goal
of palliative care services. This pilot study explored the application of the Quality of Life at …

The family meeting addressing spiritual and psychosocial needs in a palliative care setting: usefulness and challenges to implementation

H Tan, A Wilson, I Olver, C Barton - Progress in Palliative Care, 2011 - Taylor & Francis
Introduction This study evaluated the use of a family meeting model to address the spiritual
needs of palliative patients and their family members in the context of two metropolitan …