[HTML][HTML] Sources of stress, family functioning, and needs of families with a chronic critically ill child: a qualitative study
C Grandjean, P Ullmann, M Marston, MC Maitre… - Frontiers in …, 2021 - frontiersin.org
PICU hospitalization is particularly stressful for families. When it is prolonged and the
prognostic is uncertain, it can significantly and negatively affect the whole family. To date …
prognostic is uncertain, it can significantly and negatively affect the whole family. To date …
[HTML][HTML] Predictors of quality of life among parents of children with chronic diseases: a cross-sectional study
F Toledano-Toledano, J Moral de la Rubia, LA Nabors… - Healthcare, 2020 - mdpi.com
Quality of life (QOL) is a key aspect of the health care process for children with chronic
diseases and their families. Although clinical evidence regarding the impact of chronic …
diseases and their families. Although clinical evidence regarding the impact of chronic …
The longitudinal impact of an evidence‐based multiple family group intervention (Amaka Amasanyufu) on family cohesion among children in Uganda: Analysis of the …
Family functioning plays a critical role in childhood disruptive behavior disorders (The
Family Journal, 2003, 11 (1), 33–41; Research in Nursing and Health, 2016, 39 (4), 229 …
Family Journal, 2003, 11 (1), 33–41; Research in Nursing and Health, 2016, 39 (4), 229 …
[HTML][HTML] Desirable components for a customized, home-based, digital care-management app for children and young people with long-term, chronic conditions: a …
R Nightingale, A Hall, C Gelder, S Friedl… - Journal of medical …, 2017 - jmir.org
Background Mobile apps for mobile phones and tablet devices are widely used by children
and young people aged 0-18 years with long-term health conditions, such as chronic kidney …
and young people aged 0-18 years with long-term health conditions, such as chronic kidney …
Effects of caregiver-involved interventions on the quality of life of children and adolescents with chronic conditions and their caregivers: a systematic review and meta …
N Sheng, J Ma, W Ding, Y Zhang - Quality of Life Research, 2019 - Springer
Purpose Childhood chronic conditions have a considerable effect on the quality of life (QoL)
of pediatric patients and their caregivers. The purpose of this meta-analysis was to evaluate …
of pediatric patients and their caregivers. The purpose of this meta-analysis was to evaluate …
[HTML][HTML] Assessment of the quality of life in parents of children with ADHD: validation of the multicultural quality of life index in Norwegian pediatric mental health …
I Mundal, P Laake, J Mezzich, SK Bjørkly… - Frontiers in …, 2021 - frontiersin.org
Background: The brief generic Multicultural Quality of Life Index (MQLI) is a culturally
informed self-report 10-item questionnaire used to measure health-related quality of life …
informed self-report 10-item questionnaire used to measure health-related quality of life …
Psychosocial functioning of parents of children with heart disease—Describing the landscape
The aim was to describe the psychological functioning of parents of school-age children with
heart disease (HD) in a large-scale, transnational evaluation of parent dyads across the …
heart disease (HD) in a large-scale, transnational evaluation of parent dyads across the …
Multifaceted support interventions for siblings of children with cancer: a systematic review
K Mooney-Doyle, S Burley, E Ludemann… - Cancer nursing, 2021 - journals.lww.com
Background When a child is given a diagnosis of cancer, the impact reverberates through
the family unit. Siblings, in particular, experience an accumulation of distress. Siblings of …
the family unit. Siblings, in particular, experience an accumulation of distress. Siblings of …
Mental–physical multimorbidity in youth: associations with individual, family, and health service use outcomes
MA Ferro, EL Lipman, RJ Van Lieshout… - Child Psychiatry & …, 2019 - Springer
Prevalence, correlates, and outcomes of youth with comorbid mental and physical
conditions (ie, multimorbidity) were examined in this cross-sectional study. Participants were …
conditions (ie, multimorbidity) were examined in this cross-sectional study. Participants were …
Disruptions and adaptations in family functioning: A study of families' experiences with PANS/PANDAS
JL Dolce, MD LaRusso, C Abadia-Barrero - Journal of Child and Family …, 2022 - Springer
The current study examined changes in family functioning following the onset of Pediatric
Acute-Onset Neuropsychiatric Syndrome (PANS)/Pediatric Autoimmune Neuropsychiatric …
Acute-Onset Neuropsychiatric Syndrome (PANS)/Pediatric Autoimmune Neuropsychiatric …