End-of-life expectations and experiences among nursing home patients and their relatives—A synthesis of qualitative studies

A Fosse, MA Schaufel, S Ruths, K Malterud - Patient education and …, 2014 - Elsevier
Objective Synthesize research about patients' and relatives' expectations and experiences
on how doctors can improve end-of-life care in nursing homes. Methods We systematically …

Clinical trials in palliative care: a systematic review of their methodological characteristics and of the quality of their reporting

R Bouça-Machado, M Rosário, J Alarcão… - BMC palliative …, 2017 - Springer
Background Over the past decades there has been a significant increase in the number of
published clinical trials in palliative care. However, empirical evidence suggests that there …

[HTML][HTML] Comparing palliative care in care homes across Europe (PACE): protocol of a cross-sectional study of deceased residents in 6 EU countries

L Van den Block, T Smets, N van Dop, E Adang… - Journal of the American …, 2016 - Elsevier
Objectives Although a growing number of older people are dying in care homes, palliative
care has developed in these settings only recently. Cross-country representative …

Integrating palliative care in long-term care facilities across Europe (PACE): protocol of a cluster randomized controlled trial of the 'PACE Steps to Success' …

T Smets, BBD Onwuteaka-Philipsen, R Miranda… - BMC palliative …, 2018 - Springer
Background Several studies have highlighted the need for improvement in palliative care
delivered to older people long-term care facilities. However, the available evidence on how …

Palliative care research–a systematic review of foci, designs and methods of research conducted in Sweden between 2007 and 2012

I Henoch, I Carlander, M Holm, I James… - … journal of caring …, 2016 - Wiley Online Library
Background In 2007, a literature review was undertaken of palliative care research from
Sweden during the 1970s–2006, paving the way for a follow‐up study to explore the recent …

Development and evaluation of oral Cancer quality-of-life questionnaire (QOL-OC)

M Nie, C Liu, YC Pan, CX Jiang, BR Li, XJ Yu, XY Wu… - BMC cancer, 2018 - Springer
Background In this study scales and items for the Oral Cancer Quality-of-life Questionnaire
(QOL-OC) were designed and the instrument was evaluated. Methods The QOL-OC was …

Palliative care for patients and families with Parkinson's disease

R Bouca-Machado, N Titova, KR Chaudhuri… - International review of …, 2017 - Elsevier
Parkinson's disease is the second most common neurodegenerative disease worldwide.
There is widespread consensus that Parkinson patients, their carers, and clinicians involved …

Translating the patient dignity inventory

K Blomberg, O Lindqvist, CW Harstäde… - … Journal of Palliative …, 2019 - magonlinelibrary.com
Background: The Patient Dignity Inventory (PDI) is based on an empirically-driven dignity
model that has been developed and used for clinically assessing the various sources of …

Music Therapy to Facilitate Relationship Completion at the End of Life: A Mixed-Methods Study

FN Hsieh, H Shoemark, WL Magee - Journal of Music Therapy, 2024 - academic.oup.com
The concept of relationship completion is embodied as the core belief for end-of-life care in
Taiwan, known as the Four Expressions in Life. No studies have been published …

[HTML][HTML] The PRISMA Symposium 4: how should Europe progress end-of-life and palliative clinical care research? Recommendations from the proceedings

BA Daveson, R Harding, N Derycke, PV Berghe… - Journal of pain and …, 2011 - Elsevier
Within aging European populations, the need to progress end-of-life and palliative care
policy is becoming increasingly important. PRISMA, a European Commission-funded …