Children's palliative care in low-and middle-income countries

J Downing, RA Powell, J Marston, C Huwa… - Archives of disease in …, 2016 - adc.bmj.com
One-third of the global population is aged under 20 years. For children with life-limiting
conditions, palliative care services are required. However, despite 80% of global need …

[HTML][HTML] Pediatric palliative care through the eyes of healthcare professionals, parents and communities: a narrative review

R Saad, HAS Huijer, S Noureddine… - Annals of palliative …, 2022 - apm.amegroups.org
Methods: Four databases were searched: Medline, EMBASE, PsychINFO, and Cumulative
Index to Nursing and Allied Health Literature Complete. The search strategy combined …

Specialized pediatric palliative home care: a prospective evaluation

G Groh, GD Borasio, C Nickolay… - Journal of palliative …, 2013 - liebertpub.com
Abstract Objectives: In Germany since 2007 children with advanced life-limiting diseases are
eligible for Pediatric Palliative Home Care (PPHC), which is provided by newly established …

Effectiveness of a pediatric palliative home care team as experienced by parents and health care professionals

R Vollenbroich, A Duroux, M Grasser… - Journal of palliative …, 2012 - liebertpub.com
Objectives: Little data are available on palliative home care for children. The objective of this
study was to evaluate the effectiveness of a specialized pediatric palliative home care team …

A failing medical educational model: a self-assessment by physicians at all levels of training of ability and comfort to deliver bad news

E Orgel, R McCarter, S Jacobs - Journal of palliative medicine, 2010 - liebertpub.com
Objective: Patient surveys consistently show physician communication remains less than
ideal. While previous studies have demonstrated a lack of trainee confidence in delivering …

Perceptions of neonatal palliative care: similarities and differences between medical and nursing staff in a level IV neonatal intensive care unit

SJ Kyc, CJ Bruno, V Shabanova… - Journal of palliative …, 2020 - liebertpub.com
Background: A significant number of newborns are affected by life-limiting or life-threatening
conditions. Despite this prevalence, there are inconsistencies in attitudes toward, and …

Training pediatric fellows in palliative care: a pilot comparison of simulation training and didactic education

KE Brock, HJ Cohen, BM Sourkes, JJ Good… - Journal of Palliative …, 2017 - liebertpub.com
Background: Pediatric fellows receive little palliative care (PC) education and have few
opportunities to practice communication skills. Objective: In this pilot study, we assessed (1) …

Improving staff knowledge and attitudes toward providing psychosocial support to NICU parents through an online education course

SL Hall, ME Famuyide, SN Saxton… - Advances in Neonatal …, 2019 - journals.lww.com
Background: Provider–parent communication is a critical determinant of how neonatal
intensive care unit (NICU) parents cope, yet staff feel inadequately trained in communication …

Pediatric Project ECHO®: A Virtual Community of Practice to Improve Palliative Care Knowledge and Self-Efficacy among Interprofessional Health Care Providers

C Lalloo, JA Osei-Twum, A Rapoport… - Journal of palliative …, 2021 - liebertpub.com
Background: Health care providers (HCPs) require ongoing training and mentorship to fully
appreciate the palliative care needs of children. Project ECHO®(Extension for Community …

Experiences at the end of life from the perspective of bereaved parents: Results of a qualitative focus group study

LK Sedig, JL Spruit, TK Paul… - American Journal of …, 2020 - journals.sagepub.com
Background: Palliative care principles are known to support the experiences of children and
their families throughout the illness trajectory. However, there is little knowledge of the …