What is quality of life and how do we measure it? Relevance to Parkinson's disease and movement disorders

P Martinez‐Martin - Movement Disorders, 2017 - Wiley Online Library
Health‐related quality of life is a patient‐reported outcome that complements clinical
evaluation and provides information about disease activity and effects of the treatment. The …

Dimensions used in instruments for QALY calculation: a systematic review

M Touré, CRC Kouakou, TG Poder - International Journal of …, 2021 - mdpi.com
Economic assessment is of utmost importance in the healthcare decision-making process.
The quality-adjusted life-year (QALY) concept provides a rare opportunity to combine two …

A systematic review of the literature on the development of condition-specific preference-based measures of health

E Goodwin, C Green - Applied health economics and health policy, 2016 - Springer
Background Health state utility values (HSUVs) are required to calculate quality-adjusted life-
years (QALYs). They are frequently derived from generic preference-based measures of …

In support of an individualized approach to assessing quality of life: comparison between Patient Generated Index and standardized measures across four health …

NE Mayo, A Aburub, MJ Brouillette, A Kuspinar… - Quality of Life …, 2017 - Springer
Background Individualized measures of health-related quality life (HRQL) have been used
for decades and shown to provide unique information, but little work has been done to …

Longer term effectiveness of inpatient multidisciplinary rehabilitation on health-related quality of life in MS patients: A pragmatic randomized controlled trial–The …

F Boesen, M Nørgaard, P Trénel… - Multiple Sclerosis …, 2018 - journals.sagepub.com
Background: There is insufficient evidence to support the effectiveness of multidisciplinary
rehabilitation on the health-related quality of life (HRQoL) of MS patients. Objectives: To …

A randomised double-blind placebo-controlled feasibility trial of flavonoid-rich cocoa for fatigue in people with relapsing and remitting multiple sclerosis

S Coe, J Cossington, J Collett, A Soundy… - Journal of Neurology …, 2019 - jnnp.bmj.com
The impact of flavonoids on fatigue has not been investigated in relapsing and remitting
multiple sclerosis (RRMS). Objective To determine the feasibility and estimate the potential …

A scoping review to create a framework for the steps in developing condition-specific preference-based instruments de novo or from an existing non-preference-based …

TCO Tsui, SC Torres, JM Bielecki, N Mitsakakis… - Health and Quality of …, 2024 - Springer
Background There is no widely accepted framework to guide the development of condition-
specific preference-based instruments (CSPBIs) that includes both de novo and from …

Development of a prototype for a bilingual patient-reported outcome measure of the important health aspects of quality of life in people living with HIV: the Preference …

KKV Mate, B Lebouché, MJ Brouillette… - Journal of Personalized …, 2022 - mdpi.com
(1) Background: The aim of this project was to develop a short, HIV-specific, health-related
quality of life measure with a scoring system based on patient preferences for the different …

Developing the breast utility instrument to measure health-related quality-of-life preferences in patients with breast cancer: selecting the item for each dimension

TCO Tsui, ME Trudeau, N Mitsakakis… - MDM Policy & …, 2022 - journals.sagepub.com
Introduction. Generic preference-based instruments inadequately measure breast cancer
(BrC) health-related quality-of-life preferences given advances in therapy. Our overall …

Psychometric properties of measures of upper limb activity performance in adults with and without spasticity undergoing neurorehabilitation–A systematic review

S Pike, A Cusick, K Wales, L Cameron… - Plos one, 2021 - journals.plos.org
Introduction This systematic review appraises the measurement quality of tools which
assess activity and/or participation in adults with upper limb spasticity arising from …