Biomedical research often involves studying patient data that contain personal information.
Inappropriate use of these data might lead to leakage of sensitive information, which can put …

Momentum around the era of genomic medicine is building, and with it, anticipation of the
benefits that whole genome analysis (personalized or individualized genomics) will bring for …

Developments in genomics research have been accompanied by a controversial ethical
injunction: that researchers disclose individually relevant research results to research …

Currently, the ethics infrastructure–from medical and scientific training to the scrutiny of
ethics committees–focuses on trying to reform informed consent to do a job which it is simply …

It is increasingly recognized that effective and appropriate data sharing requires the
development of models of good data-sharing practice capable of taking seriously both the …

It is unclear how genomic incidental finding (GIF) prospects should be addressed in
informed consent processes. An exploratory study on this topic was conducted with 34 …

Advances in genome sequencing together with the introduction of personalized medicine
offer promising new avenues for research and precision treatment, particularly in the field of …

There are several unresolved challenges associated with the clinical application of genome-
wide sequencing technologies. One of the most discussed issues is incidental findings (IF) …

Biobanks are controversial due to their ethical, legal, and social implications. Recent
discussion has highlighted a central role for governance in helping to address these …

With the domestic and international proliferation of biobanks and their associated
connections to health information databases, scholarly attention has been turning from the …