The impacts and effectiveness of support for people bereaved through advanced illness: a systematic review and thematic synthesis
E Harrop, F Morgan, M Longo, L Semedo… - Palliative …, 2020 - journals.sagepub.com
Background: Bereavement support is a key component of palliative care, with different types
of support recommended according to need. Previous reviews have typically focused on …
of support recommended according to need. Previous reviews have typically focused on …
The experiences of, and need for, palliative care for people with motor neurone disease and their informal caregivers: a qualitative systematic review
K Flemming, V Turner, S Bolsher, B Hulme… - Palliative …, 2020 - journals.sagepub.com
Background: Despite being a terminal neurodegenerative disease, the role of palliative care
is less recognised for motor neurone disease than for other life-limiting conditions …
is less recognised for motor neurone disease than for other life-limiting conditions …
Support needs and barriers to accessing support: Baseline results of a mixed-methods national survey of people bereaved during the COVID-19 pandemic
E Harrop, S Goss, D Farnell, M Longo… - Palliative …, 2021 - journals.sagepub.com
Background: The COVID-19 pandemic is a mass bereavement event which has profoundly
disrupted grief experiences. Understanding support needs and access to support among …
disrupted grief experiences. Understanding support needs and access to support among …
Voices that matter: end-of-life care in two acute hospitals from the perspective of bereaved relatives
S Donnelly, G Prizeman, DÓ Coimín, B Korn… - BMC palliative …, 2018 - Springer
Background End-of-life care (EoLC) is an experience that touches the lives of everyone.
Dying in an acute hospital is a common occurrence in developed countries across the world …
Dying in an acute hospital is a common occurrence in developed countries across the world …
Ethical challenges in family caregivers of patients with advanced cancer–a qualitative study
A Ullrich, M Theochari, C Bergelt, G Marx, K Woellert… - BMC Palliative Care, 2020 - Springer
Background Caring for patients with advanced or terminal diseases can confront family
caregivers (FC) with ethical challenges. The present study aims at tracing paths connected …
caregivers (FC) with ethical challenges. The present study aims at tracing paths connected …
Improving the medical assistance in dying (MAID) process: a qualitative study of family caregiver perspectives
BM Hales, S Bean, E Isenberg-Grzeda… - Palliative & Supportive …, 2019 - cambridge.org
ObjectiveThe road to legalization of Medical Assistance in Dying (MAID) across Canada has
largely focused on legislative details such as eligibility and establishment of regulatory …
largely focused on legislative details such as eligibility and establishment of regulatory …
Caregivers' experiences of end‐of‐life caregiving to severely ill relatives with cancer dying at home: A qualitative study in the Faroe Islands
EJD Johannesen, H Timm… - Scandinavian journal of …, 2023 - Wiley Online Library
Abstract Background and Aim It is common among people with advanced cancer to wish to
die at home, but only a few succeed in doing so. The willingness of family members to care …
die at home, but only a few succeed in doing so. The willingness of family members to care …
Dying in acute hospitals: voices of bereaved relatives
D Ó Coimín, G Prizeman, B Korn, S Donnelly… - BMC palliative …, 2019 - Springer
Background Internationally there is an increasing concern about the quality of end-of-life
care (EoLC) provided in acute hospitals. More people are cared for at end of life and die in …
care (EoLC) provided in acute hospitals. More people are cared for at end of life and die in …
“Being an informal caregiver–strengthening resources”: mixed methods evaluation of a psychoeducational intervention supporting informal caregivers in palliative …
T Theißen, A Ullrich, K Oechsle, J Wikert… - BMC Palliative Care, 2024 - Springer
Background Informal caregivers are key support for patients with progressive incurable
diseases. However, their own needs often remain unmet. Therefore, we developed …
diseases. However, their own needs often remain unmet. Therefore, we developed …
Anticipatory prescribing in community end-of-life care in the UK and Ireland during the COVID-19 pandemic: online survey
Background Anticipatory prescribing (AP) of injectable medications in advance of clinical
need is established practice in community end-of-life care. Changes to prescribing …
need is established practice in community end-of-life care. Changes to prescribing …