Many Indigenous people have a deep mistrust of research, with some describing research
as one of the “dirtiest” words in Indigenous language. The histories and experiences behind …

There is increasing potential to improve the research and reporting on the health and
wellbeing of Indigenous and Tribal peoples through the collection and (re) use of population …

Dynamic Consent (DC) is both a model and a specific web-based tool that enables clear,
granular communication and recording of participant consent choices over time. The DC …

The regulation of genomic data sharing in Australia is a confusing mix of common law,
legislation, ethical guidelines, and codes of practice. Beyond privacy laws, which only apply …

In Australia, guidelines for ethical conduct of human research are defined in the National
Statement on Ethical Conduct in Human Research, which states:“consent should be a …

Compared to European ancestral groups, Indigenous Canadians are more likely to have
uninterpretable genome‐wide sequencing results due to non‐representation in reference …

Developments in genetics, biotechnology and medical science over the past few decades
have provided a host of new tools and procedures with which to identify, interpret and act …

Sustainable management and conservation (SMC) projects for natural resources in
collaboration with Indigenous Peoples using a genomics approach are increasing in …

In articulating the protection-inclusion dilemma, Friesen et al.(2023) identify an important
issue facing institutional review boards (IRBs) and elucidate historical factors contributing to …

Whereas biological materials were once transferred freely, there has been a marked shift in
the formalisation of exchanges involving these materials, primarily through the use of …