Patients as partners in health research: a scoping review

TL McCarron, F Clement, J Rasiah, C Moran… - Health …, 2021 - Wiley Online Library
Background The role of patient involvement in health research has evolved over the past
decade. Despite efforts to engage patients as partners, the role is not well understood. We …

[HTML][HTML] Policy-making and implementation for newborn bloodspot screening in Europe: a comparison between EURORDIS principles and UK practice

S Lombardo, F Seedat, D Elliman… - The Lancet Regional …, 2023 - thelancet.com
Newborn bloodspot screening (NBS) policy is a contentious area in Europe. Variation in the
screening panels on offer, in the approach to evidence assessment and in the use of health …

Patient and public involvement in health economics modelling raises the need for normative guidance

S Harvard, E Winsberg - Pharmacoeconomics, 2023 - Springer
Patient and public involvement in health economics research and health technology
assessment has been increasing for some time; however, patient and public involvement in …

[HTML][HTML] Patient and public involvement (PPI) in health economics methodology research: reflections and recommendations

H Al-Janabi, J Coles, J Copping, N Dhanji… - The Patient-Patient …, 2021 - Springer
Patient and public involvement (PPI) can be used in methods research, as well as applied
research, in health economics. However, methods research goals may seem quite abstract …

[HTML][HTML] Involving patients in health economics research:“The PACTS Principles”

A Hawton, K Boddy, R Kandiyali, L Tatnell… - The Patient-Patient …, 2021 - Springer
Discussion of public and patient involvement (PPI) in health economics (HE) research is
growing. There is much literature on PPI principles and standards, but little specifically …

Stakeholder engagement in economic evaluation: Protocol for using the nominal group technique to elicit patient, healthcare provider, and health system stakeholder …

M Wilson, K Thavorn, T Hawrysh, ID Graham… - BMJ open, 2021 - bmjopen.bmj.com
Introduction Chimeric antigen receptor T-cell (CAR-T) therapy is a class of immunotherapy.
An economic evaluation conducted at an early stage of development of CAR-T therapy for …

[HTML][HTML] Incorporating public and wider stakeholder views in the design of health state valuation studies in adults and young people: an undervalued resource?

PA Powell - Expert Review of Pharmacoeconomics & Outcomes …, 2024 - Taylor & Francis
Health state valuation (eg, calculating numerical values representing people's relative
preference for living in particular health states) is an essential ingredient for health …

[HTML][HTML] Knowledge of public patient involvement among health economists in Ireland: a baseline audit

E O'Shea, F Ogbebor, M Queally… - HRB Open …, 2019 - hrbopenresearch.org
Background: While there is growing public and patient involvement (PPI) in health research
in Ireland, there is little information on the extent to which PPI has permeated the field of …

[HTML][HTML] Quantitative evidence synthesis methods for the assessment of the effectiveness of treatment sequences for clinical and economic decision making: a review …

RA Lewis, D Hughes, AJ Sutton, C Wilkinson - Pharmacoeconomics, 2021 - Springer
Sequential use of alternative treatments for chronic conditions represents a complex
intervention pathway; previous treatment and patient characteristics affect both the choice …

[HTML][HTML] Protocol: Stakeholder engagement in economic evaluation: Protocol for using the nominal group technique to elicit patient, healthcare provider, and health …

M Wilson, K Thavorn, T Hawrysh, ID Graham, H Atkins… - BMJ Open, 2021 - ncbi.nlm.nih.gov
Introduction Chimeric antigen receptor T-cell (CAR-T) therapy is a class of immunotherapy.
An economic evaluation conducted at an early stage of development of CAR-T therapy for …