[HTML][HTML] The child with medical complexity

M Gallo, R Agostiniani, R Pintus, V Fanos - Italian Journal of Pediatrics, 2021 - Springer
Children with medical complexity represent a big challenge for the physicians, their families
and the society as well. Although there is no clear definition of this type of patients, they are …

The child with severe chronic illness in the ICU: a concise review

JD Edwards, DM Goodman - Critical care medicine, 2022 - journals.lww.com
OBJECTIVES: Children with severe chronic illness are a prevalent, impactful, vulnerable
group in PICUs, whose needs are insufficiently met by transitory care models and a narrow …

Effectiveness of structured care coordination for children with medical complexity: the complex care for kids Ontario (CCKO) randomized clinical trial

E Cohen, S Quartarone, J Orkin, ME Moretti… - Jama …, 2023 - jamanetwork.com
Importance Children with medical complexity (CMC) have chronic conditions and high
health needs and may experience fragmented care. Objective To compare the effectiveness …

[HTML][HTML] The Development of a Communication Tool to Aid Parent-Centered Communication between Parents and Healthcare Professionals: A Quality Improvement …

LV Marino, N Collaḉo, S Coyne, M Leppan… - Healthcare, 2023 - mdpi.com
Good communication is central to good healthcare. As a result of poor communication
between parents and healthcare professionals (HCPs) in clinical settings, this study aimed …

“What I would do to take away your pain”: a photovoice project conducted by mothers of children with medical complexity

M Sonsteng-Person, J García-Pérez… - Qualitative Health …, 2023 - journals.sagepub.com
Research identifies that families of children with medical complexities in the United States
have diverse and complex needs. Despite research emphasizing that families demonstrate …

Parent and provider perspectives on primary continuity intensivists and nurses for long-stay pediatric intensive care unit patients

JD Edwards, EP Williams, BL McHale… - Annals of the …, 2023 - atsjournals.org
Rationale: Primary continuity intensivists and nurses for long-stay patients (LSPs) in
pediatric intensive care units (PICUs) are understudied strategies used to mitigate the …

[HTML][HTML] Sources of stress, family functioning, and needs of families with a chronic critically ill child: a qualitative study

C Grandjean, P Ullmann, M Marston, MC Maitre… - frontiers in …, 2021 - frontiersin.org
PICU hospitalization is particularly stressful for families. When it is prolonged and the
prognostic is uncertain, it can significantly and negatively affect the whole family. To date …

Clinical care strategies that support parents of children with complex chronic conditions

JF Bogetz, A Revette… - Pediatric Critical Care …, 2021 - journals.lww.com
OBJECTIVES: Children with complex chronic conditions often receive inpatient and end-of-
life care in the ICU, yet little is known about the clinical care strategies that best support this …

Experiences of parents of children with medical complexity in the pediatric intensive care unit: a scoping review

C Gallegos, N Cacchillo - Critical Care Nurse, 2023 - AACN
Background Medical advances and decreased mortality rates in the pediatric intensive care
unit have increased the number of children surviving illnesses they may not have survived …

Barriers and facilitators to early mobilisation programmes in the paediatric intensive care unit: A scoping literature review

CE Noone, LS Franck, SL Staveski… - Nursing in critical …, 2023 - Wiley Online Library
Background Early mobilisation (EM) in paediatric intensive care units (PICU) is safe and
feasible. Nurses, patients and family caregivers are integral to EM. Understanding their …