[HTML][HTML] The child with medical complexity
M Gallo, R Agostiniani, R Pintus, V Fanos - Italian Journal of Pediatrics, 2021 - Springer
Children with medical complexity represent a big challenge for the physicians, their families
and the society as well. Although there is no clear definition of this type of patients, they are …
and the society as well. Although there is no clear definition of this type of patients, they are …
The child with severe chronic illness in the ICU: a concise review
JD Edwards, DM Goodman - Critical care medicine, 2022 - journals.lww.com
OBJECTIVES: Children with severe chronic illness are a prevalent, impactful, vulnerable
group in PICUs, whose needs are insufficiently met by transitory care models and a narrow …
group in PICUs, whose needs are insufficiently met by transitory care models and a narrow …
Effectiveness of structured care coordination for children with medical complexity: the complex care for kids Ontario (CCKO) randomized clinical trial
Importance Children with medical complexity (CMC) have chronic conditions and high
health needs and may experience fragmented care. Objective To compare the effectiveness …
health needs and may experience fragmented care. Objective To compare the effectiveness …
[HTML][HTML] The Development of a Communication Tool to Aid Parent-Centered Communication between Parents and Healthcare Professionals: A Quality Improvement …
LV Marino, N Collaḉo, S Coyne, M Leppan… - Healthcare, 2023 - mdpi.com
Good communication is central to good healthcare. As a result of poor communication
between parents and healthcare professionals (HCPs) in clinical settings, this study aimed …
between parents and healthcare professionals (HCPs) in clinical settings, this study aimed …
“What I would do to take away your pain”: a photovoice project conducted by mothers of children with medical complexity
M Sonsteng-Person, J García-Pérez… - Qualitative Health …, 2023 - journals.sagepub.com
Research identifies that families of children with medical complexities in the United States
have diverse and complex needs. Despite research emphasizing that families demonstrate …
have diverse and complex needs. Despite research emphasizing that families demonstrate …
Parent and provider perspectives on primary continuity intensivists and nurses for long-stay pediatric intensive care unit patients
JD Edwards, EP Williams, BL McHale… - Annals of the …, 2023 - atsjournals.org
Rationale: Primary continuity intensivists and nurses for long-stay patients (LSPs) in
pediatric intensive care units (PICUs) are understudied strategies used to mitigate the …
pediatric intensive care units (PICUs) are understudied strategies used to mitigate the …
[HTML][HTML] Sources of stress, family functioning, and needs of families with a chronic critically ill child: a qualitative study
C Grandjean, P Ullmann, M Marston, MC Maitre… - frontiers in …, 2021 - frontiersin.org
PICU hospitalization is particularly stressful for families. When it is prolonged and the
prognostic is uncertain, it can significantly and negatively affect the whole family. To date …
prognostic is uncertain, it can significantly and negatively affect the whole family. To date …
Clinical care strategies that support parents of children with complex chronic conditions
JF Bogetz, A Revette… - Pediatric Critical Care …, 2021 - journals.lww.com
OBJECTIVES: Children with complex chronic conditions often receive inpatient and end-of-
life care in the ICU, yet little is known about the clinical care strategies that best support this …
life care in the ICU, yet little is known about the clinical care strategies that best support this …
Experiences of parents of children with medical complexity in the pediatric intensive care unit: a scoping review
C Gallegos, N Cacchillo - Critical Care Nurse, 2023 - AACN
Background Medical advances and decreased mortality rates in the pediatric intensive care
unit have increased the number of children surviving illnesses they may not have survived …
unit have increased the number of children surviving illnesses they may not have survived …
Barriers and facilitators to early mobilisation programmes in the paediatric intensive care unit: A scoping literature review
CE Noone, LS Franck, SL Staveski… - Nursing in critical …, 2023 - Wiley Online Library
Background Early mobilisation (EM) in paediatric intensive care units (PICU) is safe and
feasible. Nurses, patients and family caregivers are integral to EM. Understanding their …
feasible. Nurses, patients and family caregivers are integral to EM. Understanding their …