Abstract Problem The Institute for Patient-and Family-Centered Care's (IPFCC) definition of
family-centered care (FCC) includes the following four core concepts: respect and dignity …

The experiences of end-of-life care by nurses in the pediatric intensive care unit are the
subject of this systematic review. Six qualitative articles from three different countries were …

Suffering holds a central place within pain research, theory, and practice. However, the
construct of pain-related suffering has yet to be operationalized by the International …

Background Many parents of children with advanced cancer report curative goals and
continue intensive therapies that can compound symptoms and suffering. Factors that …

Background Parents' perceptions of critical care during the final days of their child's life
shape their grief for decades. Little is known about nursing care needs of children actively …

Objectives: When contemplating tracheostomy placement in a pediatric patient, a family-
physician conference is often the setting for the disclosure of risks and benefits of the …

Purpose Parents' perceptions of their child's suffering affect their bereavement experience.
Identifying factors that shape parental perceptions of suffering could help build effective …

Context It is challenging to provide supportive intensive care to infants in the neonatal
intensive care unit (NICU), giving them every chance for survival, while also trying to …

This article argues that while the presence and influence of “futility” as a concept in medical
decision-making has declined over the past decade, medicine is seeing the rise of a new …

Background Post-surgical pain in children is common, severe, and inadequately controlled.
An effective model should involve the participation of parents. Aims To investigate parental …