[HTML][HTML] Invisible bleeds: Lived experiences and barriers to care for men with hemophilia

S Arya, FM Siad, P Wilton, D Page… - Journal of Thrombosis …, 2022 - Elsevier
Abstract Introduction Guidelines of the World Federation of Hemophilia support the provision
of equitable, optimal care for people with hemophilia (PWH). However, limited research …

[PDF][PDF] Family caregiver beliefs and barriers to effective pain management of cancer patients in home care settings

A Konstantis, T Exiara - J BUON, 2018 - jbuon.com
Purpose: Pain is one of the most common symptoms in cancer patients, and its management
is a significant goal in supportive care. Many barriers interfere with its effective control …

“You Always Have It in the Back of Your Mind”—Feelings, Coping, and Support Needs of Women with Pathogenic Variants in Moderate-Risk Genes for Hereditary …

C Stracke, C Lemmen, K Rhiem, R Schmutzler… - International journal of …, 2022 - mdpi.com
Hereditary breast cancer accounts for approximately 30% of newly diagnosed breast cancer
(BC) cases. Pathogenic variants in moderate-risk BC genes (MBCG) differ from those in high …

[HTML][HTML] The process of structuring community health needs by public health nurses through daily practice: A modified grounded theory study

M Okura - Asian Nursing Research, 2019 - Elsevier
Purpose It is extremely difficult to apply the model learned in basic education for public
health nurses (PHNs) to conduct community health assessments. The purpose of this study …

Correlation between ways of coping and quality of life in Iranian husbands of women with breast cancer

MBB Shamloo, M Nasiri, M Maneiy… - … journal of palliative …, 2020 - magonlinelibrary.com
Background: Palliative nursing care provides the best possible quality of life (QoL) for
patients who face life-threatening conditions, such as breast cancer, and their families. It …

Self-Control as a Mediator between Caregiver Burden and Quality of Life in Cancer Patient Primary Caregivers

WKG Albert, A Fahrudin… - Islamic …, 2023 - journal.iaimnumetrolampung.ac.id
This study was conducted to identify the influence of the burden of care on the quality-of-life
dimensions and examine the role of self-control as a mediator on the burden of care and the …

[HTML][HTML] Adopción del rol y calidad de vida de cuidadores de pacientes oncológicos en Medellín, Colombia

HE Escalante Hernández, CP Montoya Zapata… - Avances en …, 2022 - scielo.org.co
Objetivo: Determinar el nivel de adopción del rol y la calidad de vida de los cuidadores
familiares de personas con cáncer. Materiales y métodos: Estudio descriptivo transversal …

Factors influencing psychosocial well-being in family caregivers of people with amyotrophic lateral sclerosis

HS Chu, YR Tak, SH Kim - Journal of Korean Academy of …, 2018 - synapse.koreamed.org
Purpose The purpose of this study was to identify factors influencing psychosocial well-
being in family caregivers of patients with amyotrophic lateral sclerosis (ALS). Methods A …

Fostering Meaning Making

M Grossman - Promoting Healing and Resilience in People with …, 2022 - Springer
Meaning making is an integral part of psychosocial coping processes of resilience. Through
appraisal, reappraisal, interpretations, and other meaning-making processes, humans …

Cancer and caregiving among older Black Americans and families

KR Ellis - Annual Review of Gerontology and Geriatrics, 2022 - connect.springerpub.com
The health outcomes of older Black adults with cancer are influenced by individual, familial,
and contextual factors that highlight unexplored opportunities to better understand and …