Digital twins and the emerging science of self: implications for digital health experience design and “small” data

SM Schwartz, K Wildenhaus, A Bucher… - Frontiers in Computer …, 2020 - frontiersin.org
The technology currently available for quantifying various biometric, behavioral, emotional,
cognitive, and psychological aspects of daily life has become increasingly diverse, accurate …

A long way to go: patient perspectives on digital health for Parkinson's disease

S Riggare, J Stamford… - Journal of Parkinson's …, 2021 - content.iospress.com
Digital health promises to improve healthcare, health, and wellness through the use of
digital technologies. The purpose of this commentary is to review and discuss the field of …

Whose advice is credible? Claiming lay expertise in a Covid-19 online community

L Au, G Eyal - Qualitative Sociology, 2022 - Springer
During the initial months of the Covid-19 pandemic, credentialed experts—scientists,
doctors, public health experts, and policymakers—as well as members of the public and …

A conceptual framework for personal science

GI Wolf, M De Groot - Frontiers in Computer Science, 2020 - frontiersin.org
This paper introduces a conceptual framework to guide research and education into the
practice of personal science, which we define as using empirical methods to pursue …

Face-to-face more important than digital communication for mental health during the pandemic

S Stieger, D Lewetz, D Willinger - Scientific Reports, 2023 - nature.com
During the lockdowns associated with the COVID-19 pandemic, many people tried to
compensate for limited face-to-face interaction by increasing digital communication. Results …

Refused-knowledge during the COVID-19 pandemic: Mobilising experiential expertise for care and well-being

S Crabu, I Picardi, V Turrini - Science as Culture, 2023 - Taylor & Francis
Since the early period of the COVID-19 pandemic concerned groups of people have
produced knowledge refused by institutional science of how to manage public health and …

Digitized Patients: Elaborative Tinkering and Knowledge Practices in the Open-source Type 1 Diabetes “Looper Community”

B Jansky - Science, Technology, & Human Values, 2024 - journals.sagepub.com
In this article, I explore knowledge practices in increasingly digitized, data-driven, and
personalized healthcare settings by empirically focusing on the “looper community” in type 1 …

Reconfiguring health knowledges? Contemporary modes of self-care as 'everyday fringe medicine'

P Vuolanto, H Bergroth, J Nurmi… - Public Understanding …, 2020 - journals.sagepub.com
The contestation of expertise is perhaps nowhere more pronounced than in the field of
health and well-being, on which this article focuses. A multitude of practices and …

Remembering What Produced the Data: Individual and Social Reconstruction in the Context of a Quantified Self Elementary Data and Statistics Unit

VR Lee, J Drake, R Cain, J Thayne - Cognition and Instruction, 2021 - Taylor & Francis
Given growing interest in K-12 data and data science education, new approaches are
needed to help students develop robust understandings of and familiarity with data. The …

Feeling moodie: Insights from a usability evaluation to improve the design of mHealth apps

G Chan, A Alslaity, R Wilson, R Orji - International Journal of …, 2023 - Taylor & Francis
Despite the growing number of mHealth apps for tracking and helping users to form and
sustain health habits, most apps are not evidence-based and are not evaluated by the users …