The support needs of parent caregivers of children with a life-limiting illness and approaches used to meet their needs: a scoping review

FJ Gill, Z Hashem, R Stegmann… - Palliative …, 2021 - journals.sagepub.com
Background: Provision of paediatric palliative care is complex and optimally covers meeting
the individual needs of a heterogenous population of children and their parent caregivers …

Palliative care in paediatric oncology: an update

N Salins, S Hughes, N Preston - Current oncology reports, 2022 - Springer
Abstract Purpose of this Review The purpose of this review is to describe the evolution of
palliative care in paediatric oncology, the needs of children and their families in a paediatric …

Hope in the context of life-threatening illness and the end of life

DL Hill, JY Boyden, C Feudtner - Current Opinion in Psychology, 2023 - Elsevier
Recent research shows the importance of hope in the context of life-threatening illness and
the end of life for patients and their families. While some patients and family members …

Experiences and needs of parents of palliative paediatric oncology patients: A meta‐synthesis

AJN Tan, LH Tiew, S Shorey - European journal of cancer care, 2021 - Wiley Online Library
Introduction Despite palliative care being offered to paediatric cancer patients, it has limited
utilisation and often excludes parental support. Therefore, this review aims to consolidate …

Presuppositions, cost–benefit, collaboration, and competency impacts palliative care referral in paediatric oncology: a qualitative study

N Salins, S Hughes, N Preston - BMC Palliative Care, 2022 - Springer
Background Although a significant proportion of children with cancer need palliative care,
few are referred or referred late, with oncologists and haematologists gatekeeping the …

Location of end‐of‐life care of children with cancer: A systematic review of parent experiences

M Noyes, A Herbert, S Moloney, H Irving… - Pediatric blood & …, 2022 - Wiley Online Library
Objective To synthesize existing qualitative research exploring the experiences of parents
caring for children with cancer during the end‐of‐life phase, and the factors that influence …

Early for everyone: reconceptualizing palliative care in the neonatal intensive care unit

M Quinn, AB Weiss, JD Crist - Advances in Neonatal Care, 2020 - journals.lww.com
Background: Palliative care (PC) in the neonatal intensive care unit (NICU) is often provided
exclusively to infants expected to die. Standards of care support providing PC early after …

Parent-provider communication in hospitalized children with advanced heart disease

MK Miller, ED Blume, C Samsel, E Elia, DW Brown… - Pediatric …, 2022 - Springer
Communication between parents and providers of children with cardiac disease is essential
to parental decision-making. This study explored how parents of hospitalized children with …

“Don't be afraid to speak up”: Communication advice from parents and clinicians of children with cancer

BA Sisk, MA Keenan, LJ Blazin, E Kaye… - Pediatric blood & …, 2021 - Wiley Online Library
Background Parents and clinicians of children with cancer can provide advice to improve
communication that reflects lessons learned through experience. We aimed to identify …

Defining and timing of palliative opportunities in children with central nervous system tumors

AMC Massie, J Ebelhar, KE Allen… - Neuro-Oncology …, 2021 - academic.oup.com
Background Children with brain and central nervous system (CNS) tumors experience
substantial challenges to their quality of life during their disease course. These challenges …