The support needs of parent caregivers of children with a life-limiting illness and approaches used to meet their needs: a scoping review
FJ Gill, Z Hashem, R Stegmann… - Palliative …, 2021 - journals.sagepub.com
Background: Provision of paediatric palliative care is complex and optimally covers meeting
the individual needs of a heterogenous population of children and their parent caregivers …
the individual needs of a heterogenous population of children and their parent caregivers …
Palliative care in paediatric oncology: an update
Abstract Purpose of this Review The purpose of this review is to describe the evolution of
palliative care in paediatric oncology, the needs of children and their families in a paediatric …
palliative care in paediatric oncology, the needs of children and their families in a paediatric …
Hope in the context of life-threatening illness and the end of life
Recent research shows the importance of hope in the context of life-threatening illness and
the end of life for patients and their families. While some patients and family members …
the end of life for patients and their families. While some patients and family members …
Experiences and needs of parents of palliative paediatric oncology patients: A meta‐synthesis
AJN Tan, LH Tiew, S Shorey - European journal of cancer care, 2021 - Wiley Online Library
Introduction Despite palliative care being offered to paediatric cancer patients, it has limited
utilisation and often excludes parental support. Therefore, this review aims to consolidate …
utilisation and often excludes parental support. Therefore, this review aims to consolidate …
Presuppositions, cost–benefit, collaboration, and competency impacts palliative care referral in paediatric oncology: a qualitative study
Background Although a significant proportion of children with cancer need palliative care,
few are referred or referred late, with oncologists and haematologists gatekeeping the …
few are referred or referred late, with oncologists and haematologists gatekeeping the …
Location of end‐of‐life care of children with cancer: A systematic review of parent experiences
M Noyes, A Herbert, S Moloney, H Irving… - Pediatric blood & …, 2022 - Wiley Online Library
Objective To synthesize existing qualitative research exploring the experiences of parents
caring for children with cancer during the end‐of‐life phase, and the factors that influence …
caring for children with cancer during the end‐of‐life phase, and the factors that influence …
Early for everyone: reconceptualizing palliative care in the neonatal intensive care unit
M Quinn, AB Weiss, JD Crist - Advances in Neonatal Care, 2020 - journals.lww.com
Background: Palliative care (PC) in the neonatal intensive care unit (NICU) is often provided
exclusively to infants expected to die. Standards of care support providing PC early after …
exclusively to infants expected to die. Standards of care support providing PC early after …
Parent-provider communication in hospitalized children with advanced heart disease
MK Miller, ED Blume, C Samsel, E Elia, DW Brown… - Pediatric …, 2022 - Springer
Communication between parents and providers of children with cardiac disease is essential
to parental decision-making. This study explored how parents of hospitalized children with …
to parental decision-making. This study explored how parents of hospitalized children with …
“Don't be afraid to speak up”: Communication advice from parents and clinicians of children with cancer
Background Parents and clinicians of children with cancer can provide advice to improve
communication that reflects lessons learned through experience. We aimed to identify …
communication that reflects lessons learned through experience. We aimed to identify …
Defining and timing of palliative opportunities in children with central nervous system tumors
AMC Massie, J Ebelhar, KE Allen… - Neuro-Oncology …, 2021 - academic.oup.com
Background Children with brain and central nervous system (CNS) tumors experience
substantial challenges to their quality of life during their disease course. These challenges …
substantial challenges to their quality of life during their disease course. These challenges …