Dis-mantling stigma: Parenting disabled children in an age of 'neoliberal-ableism'
GM Thomas - The Sociological Review, 2021 - journals.sagepub.com
The concept of 'stigma'is a dominant presence in many disciplines, yet it frequently remains
ill-defined, individualist, and dislocated from matters of power, inequality and resistance …
ill-defined, individualist, and dislocated from matters of power, inequality and resistance …
“We were on our own”: Mothers' experiences navigating the fragmented system of professional care for autism
A Brewer - Social Science & Medicine, 2018 - Elsevier
Autism is a developmental disorder that emerges in early childhood. Treatments for autism
span a wide variety of professionals and paraprofessionals in the medical and educational …
span a wide variety of professionals and paraprofessionals in the medical and educational …
A relational ethics framework for advancing practice with children with complex health care needs and their parents
FA Carnevale, G Teachman… - Comprehensive child and …, 2017 - Taylor & Francis
Children with complex health care needs are an emerging population that commonly
requires long-term supportive services. A growing body of evidence has highlighted that …
requires long-term supportive services. A growing body of evidence has highlighted that …
Mothering a child with complexity and rarity: A narrative inquiry exploring Prader-Willi syndrome
Daily experiences of mothers caring for children with Prader-Willi syndrome (PWS) are
largely unknown and unvoiced. Knowledge of PWS has generally focused on pathology of …
largely unknown and unvoiced. Knowledge of PWS has generally focused on pathology of …
[图书][B] Grandparenting children with disabilities
M Harrington Meyer, Y Abdul-Malak… - 2020 - Springer
Amber Tatro was born with spina bifida and went on to win a 1984 Supreme Court case.
Amber had partial paralysis, impaired speech, and difficulty urinating on her own. Her family …
Amber had partial paralysis, impaired speech, and difficulty urinating on her own. Her family …
Presenting a new framework to improve engagement in physical activity programs for children and adolescents with social, emotional, and behavioral disabilities
Children and adolescents with psychiatric and neurodevelopmental diagnoses such as
anxiety, depression, autism, and attention-deficit/hyperactivity disorder (ADHD) face …
anxiety, depression, autism, and attention-deficit/hyperactivity disorder (ADHD) face …
“The media love the artificial versions of what's going on”: Media (mis) representations of Down's syndrome
GM Thomas - The British journal of sociology, 2021 - Wiley Online Library
While disability has historically been depicted in problematic ways in television, film, and
print media, more balanced and progressive cultural representations are arguably …
print media, more balanced and progressive cultural representations are arguably …
(Extra) ordinary parenting: Parents of children with disabilities in the context of disability stigma and pride
J Niedbalski - Journal of Intellectual Disabilities, 2023 - journals.sagepub.com
Introduction/background The research focuses primarily on how parents construct images of
themselves and their children that diverge from the narrative of disability as a life tragedy …
themselves and their children that diverge from the narrative of disability as a life tragedy …
Stasis-maintenance-(un) productive-presence: parenting a disabled child as crip time
AW Davidson - Disability Studies Quarterly, 2020 - dsq-sds.org
In what follows, I represent and analyze time as" crip time" in the context of parenting a child
with disabilities. That is, I seek to challenge, reimagine, and even upend, the normalized …
with disabilities. That is, I seek to challenge, reimagine, and even upend, the normalized …
[HTML][HTML] “I wouldn't want anything that would change who he is.” The relationship between perceptions of identity and attitudes towards hypothetical gene-editing in …
K Elliott, N Ahlawat, ES Beckman… - SSM-Qualitative Research …, 2022 - Elsevier
Attitudes towards hypothetical somatic and germline gene-editing technologies for those
who are directly impacted by genetic conditions are of increasing importance as these …
who are directly impacted by genetic conditions are of increasing importance as these …