Dis-mantling stigma: Parenting disabled children in an age of 'neoliberal-ableism'

GM Thomas - The Sociological Review, 2021 - journals.sagepub.com
The concept of 'stigma'is a dominant presence in many disciplines, yet it frequently remains
ill-defined, individualist, and dislocated from matters of power, inequality and resistance …

“We were on our own”: Mothers' experiences navigating the fragmented system of professional care for autism

A Brewer - Social Science & Medicine, 2018 - Elsevier
Autism is a developmental disorder that emerges in early childhood. Treatments for autism
span a wide variety of professionals and paraprofessionals in the medical and educational …

A relational ethics framework for advancing practice with children with complex health care needs and their parents

FA Carnevale, G Teachman… - Comprehensive child and …, 2017 - Taylor & Francis
Children with complex health care needs are an emerging population that commonly
requires long-term supportive services. A growing body of evidence has highlighted that …

Mothering a child with complexity and rarity: A narrative inquiry exploring Prader-Willi syndrome

G Currie, A Estefan, V Caine - Qualitative Health Research, 2024 - journals.sagepub.com
Daily experiences of mothers caring for children with Prader-Willi syndrome (PWS) are
largely unknown and unvoiced. Knowledge of PWS has generally focused on pathology of …

[图书][B] Grandparenting children with disabilities

M Harrington Meyer, Y Abdul-Malak… - 2020 - Springer
Amber Tatro was born with spina bifida and went on to win a 1984 Supreme Court case.
Amber had partial paralysis, impaired speech, and difficulty urinating on her own. Her family …

Presenting a new framework to improve engagement in physical activity programs for children and adolescents with social, emotional, and behavioral disabilities

AB Bowling, JA Frazier, AE Staiano… - Frontiers in …, 2022 - frontiersin.org
Children and adolescents with psychiatric and neurodevelopmental diagnoses such as
anxiety, depression, autism, and attention-deficit/hyperactivity disorder (ADHD) face …

“The media love the artificial versions of what's going on”: Media (mis) representations of Down's syndrome

GM Thomas - The British journal of sociology, 2021 - Wiley Online Library
While disability has historically been depicted in problematic ways in television, film, and
print media, more balanced and progressive cultural representations are arguably …

(Extra) ordinary parenting: Parents of children with disabilities in the context of disability stigma and pride

J Niedbalski - Journal of Intellectual Disabilities, 2023 - journals.sagepub.com
Introduction/background The research focuses primarily on how parents construct images of
themselves and their children that diverge from the narrative of disability as a life tragedy …

Stasis-maintenance-(un) productive-presence: parenting a disabled child as crip time

AW Davidson - Disability Studies Quarterly, 2020 - dsq-sds.org
In what follows, I represent and analyze time as" crip time" in the context of parenting a child
with disabilities. That is, I seek to challenge, reimagine, and even upend, the normalized …

[HTML][HTML] “I wouldn't want anything that would change who he is.” The relationship between perceptions of identity and attitudes towards hypothetical gene-editing in …

K Elliott, N Ahlawat, ES Beckman… - SSM-Qualitative Research …, 2022 - Elsevier
Attitudes towards hypothetical somatic and germline gene-editing technologies for those
who are directly impacted by genetic conditions are of increasing importance as these …