Human biospecimens have played a crucial role in scientific and medical advances.
Although the ethical and policy issues associated with biospecimen research have long …

Dynamic consent (DC) was originally developed in response to challenges to the informed
consent process presented by participants agreeing to 'future research'in biobanking. In the …

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Participation in biobanks tends to favor certain groups—white, middle-class, more highly-
educated—often to the exclusion of others, such as indigenous people, the socially …

Dynamic Consent (DC) is both a model and a specific web-based tool that enables clear,
granular communication and recording of participant consent choices over time. The DC …

Community‐centric approaches to engage underrepresented populations—including
community engagement, community‐level consent practices, and capacity development for …

Precision medicine promises to use genomics and other data-intensive approaches to
improve diagnosis and develop new treatments for major diseases, but also raises a range …

As the use of genomic technology has expanded in research and clinical settings, issues
surrounding informed consent for genome and exome sequencing have surfaced. Despite …

An increasing number of individuals are being recruited to whole genome sequencing
(WGS) research. When asked hypothetically, the majority of the public express willingness to …

Background As in other countries, the traditional doctor-patient relationship in the Japanese
healthcare system has often been characterised as being of a paternalistic nature. However …