International palliative care research priorities: a systematic review
F Hasson, E Nicholson, D Muldrew, O Bamidele… - BMC palliative …, 2020 - Springer
Background There has been increasing evidence and debate on palliative care research
priorities and the international research agenda. To date, however, there is a lack of …
priorities and the international research agenda. To date, however, there is a lack of …
Setting an international research agenda for fear of cancer recurrence: an online delphi consensus study
Background Fear of cancer recurrence (FCR) is common amongst cancer survivors. There is
rapidly growing research interest in FCR but a need to prioritize research to address the …
rapidly growing research interest in FCR but a need to prioritize research to address the …
Discussing personalized prognosis in amyotrophic lateral sclerosis: development of a communication guide
RM van Eenennaam, WJ Kruithof, MA van Es… - BMC neurology, 2020 - Springer
Background Personalized ENCALS survival prediction model reliably estimates the
personalized prognosis of patients with amyotrophic lateral sclerosis. Concerns were raised …
personalized prognosis of patients with amyotrophic lateral sclerosis. Concerns were raised …
Defining research priorities and needs in cancer symptoms for adults diagnosed with cancer: an Australian/New Zealand modified Delphi study
VM Yenson, I Amgarth-Duff, L Brown… - Supportive Care in …, 2023 - Springer
Purpose This study asked consumers (patients, carers) and healthcare professionals
(HCPs) to identify the most important symptoms for adults with cancer and potential …
(HCPs) to identify the most important symptoms for adults with cancer and potential …
An integrative review of Indigenous informal caregiving in the context of dementia care
L Racine, H Ford, L Johnson… - Journal of Advanced …, 2022 - Wiley Online Library
Aims To appraise the empirical literature on the needs of Indigenous informal caregivers
caring for people living with dementia in Indigenous communities. Design Whittemore and …
caring for people living with dementia in Indigenous communities. Design Whittemore and …
The information needs of people with degenerative cervical myelopathy: a qualitative study to inform patient education in clinical practice
Background Individuals with lifelong illnesses need access to adequate information about
their condition to make optimal health decisions. Degenerative Cervical Myelopathy (DCM) …
their condition to make optimal health decisions. Degenerative Cervical Myelopathy (DCM) …
Discussing personalized prognosis empowers patients with amyotrophic lateral sclerosis to regain control over their future: a qualitative study
RM van Eenennaam, LS Koppenol, WJ Kruithof… - Brain sciences, 2021 - mdpi.com
The ENCALS survival prediction model offers patients with amyotrophic lateral sclerosis
(ALS) the opportunity to receive a personalized prognosis of survival at the time of …
(ALS) the opportunity to receive a personalized prognosis of survival at the time of …
Priority research topics and patient and family needs in a national sample of hospice agencies
Context Various contextual factors surrounding hospice care have reinforced the need for
scholars to pursue practice-relevant research questions. Although priority-setting is a …
scholars to pursue practice-relevant research questions. Although priority-setting is a …
What do health care professionals want to know about assisted dying? Setting the research agenda in New Zealand
Abstract Background New Zealand recently introduced law permitting terminally ill people to
request and receive assisted dying (AD) in specified circumstances. Given the nature and …
request and receive assisted dying (AD) in specified circumstances. Given the nature and …
[HTML][HTML] Prioritizing Chinese medicine clinical research questions in cancer palliative care: international Delphi survey
Context Chinese medicine modalities, including acupuncture and Chinese herbal medicine
(CHM), have been used as palliative interventions among cancer patients. More research …
(CHM), have been used as palliative interventions among cancer patients. More research …