International palliative care research priorities: a systematic review

F Hasson, E Nicholson, D Muldrew, O Bamidele… - BMC palliative …, 2020 - Springer
Background There has been increasing evidence and debate on palliative care research
priorities and the international research agenda. To date, however, there is a lack of …

Setting an international research agenda for fear of cancer recurrence: an online delphi consensus study

J Shaw, H Kamphuis, L Sharpe, S Lebel… - Frontiers in …, 2021 - frontiersin.org
Background Fear of cancer recurrence (FCR) is common amongst cancer survivors. There is
rapidly growing research interest in FCR but a need to prioritize research to address the …

Discussing personalized prognosis in amyotrophic lateral sclerosis: development of a communication guide

RM van Eenennaam, WJ Kruithof, MA van Es… - BMC neurology, 2020 - Springer
Background Personalized ENCALS survival prediction model reliably estimates the
personalized prognosis of patients with amyotrophic lateral sclerosis. Concerns were raised …

Defining research priorities and needs in cancer symptoms for adults diagnosed with cancer: an Australian/New Zealand modified Delphi study

VM Yenson, I Amgarth-Duff, L Brown… - Supportive Care in …, 2023 - Springer
Purpose This study asked consumers (patients, carers) and healthcare professionals
(HCPs) to identify the most important symptoms for adults with cancer and potential …

An integrative review of Indigenous informal caregiving in the context of dementia care

L Racine, H Ford, L Johnson… - Journal of Advanced …, 2022 - Wiley Online Library
Aims To appraise the empirical literature on the needs of Indigenous informal caregivers
caring for people living with dementia in Indigenous communities. Design Whittemore and …

The information needs of people with degenerative cervical myelopathy: a qualitative study to inform patient education in clinical practice

I Sangeorzan, P Andriopoulou, BM Davies, A McNair - PLoS One, 2023 - journals.plos.org
Background Individuals with lifelong illnesses need access to adequate information about
their condition to make optimal health decisions. Degenerative Cervical Myelopathy (DCM) …

Discussing personalized prognosis empowers patients with amyotrophic lateral sclerosis to regain control over their future: a qualitative study

RM van Eenennaam, LS Koppenol, WJ Kruithof… - Brain sciences, 2021 - mdpi.com
The ENCALS survival prediction model offers patients with amyotrophic lateral sclerosis
(ALS) the opportunity to receive a personalized prognosis of survival at the time of …

Priority research topics and patient and family needs in a national sample of hospice agencies

TD Becker, JG Cagle - Journal of Pain and Symptom Management, 2023 - Elsevier
Context Various contextual factors surrounding hospice care have reinforced the need for
scholars to pursue practice-relevant research questions. Although priority-setting is a …

What do health care professionals want to know about assisted dying? Setting the research agenda in New Zealand

J Young, J Snelling, S Beaumont, K Diesfeld, B White… - BMC palliative …, 2023 - Springer
Abstract Background New Zealand recently introduced law permitting terminally ill people to
request and receive assisted dying (AD) in specified circumstances. Given the nature and …

[HTML][HTML] Prioritizing Chinese medicine clinical research questions in cancer palliative care: international Delphi survey

CHL Wong, IXY Wu, LG Balneaves, RSK Lo… - Journal of pain and …, 2019 - Elsevier
Context Chinese medicine modalities, including acupuncture and Chinese herbal medicine
(CHM), have been used as palliative interventions among cancer patients. More research …