Addressing Indigenous rights and interests in genetic resources has become increasingly
challenging in an open science environment that promotes unrestricted access to genomic …

Integration of genomic technology into healthcare settings establishes new capabilities to
predict disease susceptibility and optimize treatment regimes. Yet, Indigenous peoples …

Indigenous scholars are leading initiatives to improve access to genetic and genomic
research and health care based on their unique cultural contexts and within sovereign …

The potential to grow genomic knowledge and harness the subsequent clinical benefits has
escalated the building of background variant databases (BVDs) for genetic diagnosis across …

The National Ethics Advisory Committee–Kāhui Matatika o te Motu (NEAC) issues the
National Ethical Standards for Health and Disability Research and Quality Improvement (the …

The Nagoya Protocol (NP), a legal framework under the Convention on Biological Diversity
(CBD), formalises fair and equitable sharing of benefits arising from biological diversity. It …

Indigenous peoples around the world are leading discusions regarding genomic research of
humans, and more recently, species of cultural significance, to ensure the ethical and …

Historically marginalized racial and ethnic groups and Indigenous peoples are burdened by
significant health inequities that are compounded by their underrepresentation in genetic …

Gene editing is arguably the most significant recent addition to the modern biotechnology
toolbox, bringing both profoundly challenging and enabling opportunities. From a technical …

As genomic researchers are encouraged to engage in broad genomic data sharing,
American Indian/Alaska Native/Native Hawaiian (AI/AN/NH) leaders have raised questions …