Healthcare utilization and economic burden in systemic sclerosis: a systematic review

L Martin Calderon, M Chaudhary, JE Pope - Rheumatology, 2022 - academic.oup.com
Abstract Objective Systemic sclerosis (SSc) is characterized by vasculopathy, fibrosis of skin
and internal organs, and autoimmunity with complications including interstitial lung disease …

Trends in resource utilization and cost of illness in patients with active epilepsy in Germany from 2003 to 2020

LM Willems, M Hochbaum, JP Zöllner, J Schulz… - …, 2022 - Wiley Online Library
Objective This study was undertaken to calculate epilepsy‐related direct, indirect, and total
costs in adult patients with active epilepsy (ongoing unprovoked seizures) in Germany and …

Haemochromatosis patients' research priorities: Towards an improved quality of life

L Romero‐Cortadellas, V Venturi… - Health …, 2023 - Wiley Online Library
Background Chronic diseases are associated with a range of functional and psychosocial
consequences that can adversely affect patients' quality of life (QoL). Haemochromatosis …

Estimating the indirect economic burden of cancer in Jordan: a retrospective observational study

O Rashdan - BMJ open, 2024 - bmjopen.bmj.com
Objective The aim of this study is to estimate the indirect economic burden of 22 cancer
types in Jordan using both the human capital approach (HCA) and the value of a statistical …

[PDF][PDF] Az egészségnyereség mérése és értékelése krónikus betegségekben

M Péntek - 2021 - real-d.mtak.hu
A doktori értekezés határterületi kutatás eredményeinek összefoglalója, mivel témája az
orvostudomány és a közgazdaságtudomány közös mezsgyéjét érinti. Emiatt a csak egyik …

Characterization of new mutations in transferrin, DMT1 and SEC23B causing rare iron metabolism-related diseases; and the discovery of RACGAP1 as the gene …

L Romero Cortadellas - tdx.cat
Iron is a biometal involved in many physiological processes that are essential for life. Iron
metabolism is a complex and tightly regulated process both at the systemic and cellular …

[PDF][PDF] A ritka betegségek szociálpolitikai jelentősége, a RIROSZ törekvései

PGD Csaba - esely.org
The 6000-8000 type of rare diseases means a public health and socio-political problem
overall. In this paper we introduce the special situation of rare diseases, especially the …