Patient and public involvement of young people with a chronic condition in projects in health and social care: a scoping review

F van Schelven, H Boeije, V Mariën… - Health …, 2020 - Wiley Online Library
Background The involvement of young people with a chronic condition in research and
implementation projects in health and social care receives growing attention. Yet, there is a …

Active involvement of people with intellectual disabilities in health research–A structured literature review

TK Frankena, J Naaldenberg, M Cardol… - Research in …, 2015 - Elsevier
Actively involving people with intellectual disabilities (ID) in health research, also known as
inclusive health research, is increasingly popular. Currently, insight into experiences of this …

[图书][B] Ethics in participatory research for health and social well-being

S Banks, M Brydon-Miller - 2018 - api.taylorfrancis.com
This chapter introduces the topic of ethics in participatory research (PR), providing a
rationale for the book and an overview of each chapter. PR involves people whose lives are …

'You want to deal with power while riding on power': global perspectives on power in participatory health research and co-production approaches

BR Egid, M Roura, B Aktar, JA Quach, I Chumo… - BMJ global …, 2021 - gh.bmj.com
Introduction Power relations permeate research partnerships and compromise the ability of
participatory research approaches to bring about transformational and sustainable change …

Engaging the senses in qualitative research via multimodal coding: Triangulating transcript, audio, and video data in a study with sexual and gender minority youth

SL Craig, LB McInroy, A Goulden… - International Journal of …, 2021 - journals.sagepub.com
The variety of formats in which qualitative data may be collected have been explored within
the methodological literature. Yet, the multiple options for coding these data formats have …

A narrative review of the literature about people with intellectual disability who identify as lesbian, gay, bisexual, transgender, intersex or questioning

NJ Wilson, J Macdonald, B Hayman… - Journal of …, 2018 - journals.sagepub.com
This narrative review of the research literature presents a summary about the key issues
facing people with intellectual disability (ID) who identify as lesbian, gay, bisexual …

Knowledge citizens? Intellectual disability and the production of social meanings within educational research

A Taylor - Harvard Educational Review, 2018 - meridian.allenpress.com
Intellectual disability may appear to many as a barrier to participation in or the production of
educational research. Indeed, a common perception of individuals seen as having cognitive …

Are individuals with intellectual and developmental disabilities included in research? A review of the literature

KE Jones, S Ben-David, R Hole - Research and Practice in …, 2020 - Taylor & Francis
The rights of people with intellectual and developmental disabilities to be included in
research is increasingly being recognised. Given this, there is a need for further …

Patient and public involvement of young people with a chronic condition: lessons learned and practical tips from a large participatory program

F van Schelven, E van der Meulen, N Kroeze… - Research involvement …, 2020 - Springer
Plain English summary Background Young people with a chronic condition are increasingly
involved in doing research and developing tools and interventions that concern them …

[HTML][HTML] Hommes trans et handicapés: une analyse croisée du cisgenrisme et du capacitisme

A Baril - Genre, sexualité & société, 2018 - journals.openedition.org
Les recherches s' intéressant aux intersections entre transitude et handicaps et entre
cisgenrisme et capacitisme sont rares en anglais, presque absentes en français. Lorsque …