A substantial number of children cared for by pediatric palliative care physicians have
progressive non-malignant conditions. Some elements of their care overlap with care for …

Sibling relationships are one of the most long-lasting and influential relationships in a
human's life. Living with a child who has a life-threatening condition changes healthy …

Background: Pediatric palliative care focuses on comprehensive symptom management and
enhancing quality of life for children with life-threatening conditions and their families. Our …

Objective The present study examined the role of maternal posttraumatic growth in changes
in behavioral problems among the siblings of children with complex chronic health …

Background: Pediatric palliative care aims to improve quality of life among infants, children,
youth and young adults with serious illnesses, sometimes over years, but estimates of …

Aim Following the establishment of paediatric palliative care services over recent decades,
this study sought to identify information to inform future policy and practice. Methods A rapid …

Background: Patterns in location of death among children with life-threatening conditions
(eg, cancer, genetic disorders, neurologic conditions) may reveal important inequities in …

Aim To assess clinicians' experience, attitudes and confidence with advance care planning
(ACP) at a quaternary paediatric referral centre using a learning‐needs survey, and then …

Aim To identify and assess the quality of decision aids that align the decision, values and
information provided for parents making end‐of‐life or palliative care decisions for children …

Children and adolescents with complex chronic conditions, including those with life‐
threatening or life‐limiting conditions, are a heterogeneous population. Many individuals …