Presymptomatic and predictive genetic testing in minors: a systematic review of guidelines and position papers

P Borry, L Stultiëns, H Nys, JJ Cassiman… - Clinical …, 2006 - Wiley Online Library
The objective of this study is to review ethical and clinical guidelines and position papers
concerning the presymptomatic and predictive genetic testing of minors. The databases …

[图书][B] Emery's Elements of Medical Genetics: Emery's Elements of Medical Genetics E-Book

PD Turnpenny, S Ellard - 2016 - books.google.com
Everything a student needs to know about medical genetics is here in the 15th edition of this
award-winning textbook. Thoroughly updated and revised throughout to map a fast-moving …

The right not to know: an autonomy based approach

R Andorno - Journal of medical ethics, 2004 - jme.bmj.com
The emerging international biomedical law tends to recognise the right not to know one's
genetic status. However, the basis and conditions for the exercise of this right remain …

[HTML][HTML] Factors influencing intrafamilial communication of hereditary breast and ovarian cancer genetic information

G Nycum, D Avard, BM Knoppers - European Journal of Human …, 2009 - nature.com
What factors influence intrafamilial communication of hereditary breast and ovarian cancer
(HBOC) genetic risk information? Such information can have health implications for …

To tell or not to tell: barriers and facilitators in family communication about genetic risk

K Forrest, SA Simpson, BJ Wilson… - Clinical …, 2003 - Wiley Online Library
Communication about genetic risk in families is an important issue for genetic counsellors.
The objective of this study was to explore the barriers and facilitators in family …

Voluntary health insurance in the European Union: a critical assessment

E Mossialos, SMS Thomson - International journal of health …, 2002 - journals.sagepub.com
The authors examine the role and nature of the market for voluntary health insurance in the
European Union and review the impact of public policy, at both the national and EU levels …

[图书][B] Regulating reproduction: Law, technology and autonomy

E Jackson - 2001 - books.google.com
This new book provides a clear and accessible analysis of the various ways in which human
reproduction is regulated. A comprehensive exposition of the law relating to birth control …

[图书][B] The new genetics and the public's health

AR Petersen, R Bunton - 2002 - books.google.com
The rapid advancement of genetic science, fuelled by the Human Genome Project and other
related initiatives, promises a new kind of public health practice based on the pre-detection …

[HTML][HTML] Biomedicine and international human rights law: in search of a global consensus

R Andorno - Bulletin of the World Health Organization, 2002 - SciELO Public Health
Global challenges raised by biomedical advances require global responses. Some
international organizations have made significant efforts over the last few years to establish …

Communicating genetic information in the family: the familial relationship as the forgotten factor

R Gilbar - Journal of Medical Ethics, 2007 - jme.bmj.com
Communicating genetic information to family members has been the subject of an extensive
debate recently in bioethics and law. In this context, the extent of the relatives' right to know …