Optimizing neurodevelopmental outcomes following fetal diagnosis of congenital heart disease: a call for primary prevention neuropsychology

AR Cassidy, AA Neumann - Child Neuropsychology, 2023 - Taylor & Francis
Critical congenital heart disease (CHD) presents a lasting threat to quality of life through its
adverse impact on neurodevelopmental and psychosocial outcomes. As recognition of this …

Virtually delivered psychosocial intervention for prenatally diagnosed congenital heart disease: Feasibility and acceptability of HEARTPrep

E Sood, SN Nees, S Srivastava, S Ng, C Torres… - Pediatric …, 2023 - Springer
Prenatal diagnosis of congenital heart disease (CHD) often leads to anxiety, depression,
and traumatic stress in expectant mothers, with long-term implications for the child and …

[HTML][HTML] The role of congenital heart disease patient organizations in advocacy, resources, and support across the lifespan

S Ross, A Verstappen - CJC Pediatric and Congenital Heart Disease, 2023 - Elsevier
Congenital heart disease (CHD) patient organizations, comprised of experts with lived
experience, and their families and supporters, have become an essential voice for patient …

[HTML][HTML] An mHealth, patient engagement approach to understand and address parents' mental health and caregiving needs after prenatal diagnosis of critical …

AC McKechnie, KM Elgersma, TI Wagner, A Trebilcock… - PEC innovation, 2023 - Elsevier
Objective To provide an overview of the development of the Preparing Heart and
Mind™(PHM™) care program designed for parents with a prenatal diagnosis of critical …

Nurse-guided mobile health care program to reduce emotional distress experienced by parents of infants prenatally diagnosed with critical congenital heart disease: A …

AC McKechnie, KM Elgersma, MB Ambrose… - Progress in Pediatric …, 2024 - Elsevier
Background Following prenatal diagnosis of critical congenital heart disease (CCHD),
parents encounter emotional distress while facing caregiving challenges. Supportive psycho …

Evaluating how Physician attitudes may affect practice in fetal cardiac counseling

AM Martens, CC Lim, M Kelly, CS Haxel, C Ronai… - Pediatric …, 2023 - Springer
Advances in fetal cardiac imaging over the last few decades have allowed for increased
prenatal detection and detailed counseling of congenital heart disease (CHD). When CHD is …

The Structure and Utilization of Social Support Networks of Parents of Children With Congenital Heart Defects During Hospitalization

KJ Mansfield - 2023 - search.proquest.com
Parents of children with congenital heart defects (CHD) experience increased stress during
their child's hospital admission for surgical repair. The experience of hospitalization leads to …