Return of individual research results from genomic research: A systematic review of stakeholder perspectives

DF Vears, JT Minion, SJ Roberts, J Cummings… - PloS one, 2021 - journals.plos.org
Despite the plethora of empirical studies conducted to date, debate continues about whether
and to what extent results should be returned to participants of genomic research. We aimed …

Participant perspective on the recall-by-genotype research approach: a mixed-method embedded study with participants of the CHRIS study

R Biasiotto, M Kösters, K Tschigg… - European Journal of …, 2023 - nature.com
Abstract Recall-by-genotype (RbG) research recruits participants previously involved in
genetic research based on their genotype. RbG enables the further study of a particular …